Hi everyone,
First and foremost I want to tell you all how much I appreciate your support and encouragement - THANK YOU so much! You all help me through these trying times more than you can ever really know.
Barbara - thank you for the song dedication. That choked me up and brought a tear to my eye. *sniff* I had never heard that song before. It made me feel good, and gave me a huge smile.
The update: I was flat on my back for 13 hours. 6 hours of that was on the table in the angio suite. The angio went well, and then they attempted to perform an embo, but because the feeder vein into the AVM is narrower than their smallest catheter, they weren't able to access the AVM, so had to abandon the procedure.
The next 6 hours were on my back in recovery. Because they are unable to go in through the left femoral artery they've had to use the right side every time. Now there's so much scar tissue built up they were unable to put in the closure device, so that added to the time I had to lie flat afterwards.
I'm back on the 'wait and watch' approach. If the deficits don't progress during the next 3 years I'll go back in three years for another angio. If the deficits progress during the next 3 years, the docs said they'll need to consider surgery to remove the AVM. That is a prospect I am hoping we can continue to avoid if at all possible. Because the docs have told me attempting to remove it would likely make me a quad, I am totally uncomfortable even considering that as an option, but fortunately I may not even have to make that decision.
We got home Saturday night, with me having made most of the trip lying down in the back seat, and stopping to get out of the car and walk around once an hour. I was never so happy to see my own bed!!
The bruising from the IVs and all the red marks from an adhesive allergy are fading, though the incision site will probably continue to be sore and a little painful. I got a couple of blisters on the inside of my bottom lip, from the intubating tube, and I'll be really glad when those finally clear up - they bug me! lol.
All things said and done, I'm doing well, and so happy to have made it through yet another trip. Keep your fingers crossed for me that I won't have to do any of this again for another 3 years!
Thanks again everyone - you all rock!
Tori
P.S. Oh, I'd meant to say that Dr. McDougall said that because the feeder vein is as small as it is it makes the re-bleed risk smaller too. I guess we all would have kind of figured as much, but it was great to hear it.