thx all, very happy for this to be helpful 
Myself, ive had 3 bleeds - when i was 17, 18, and 24 (now 33). I lost the power os speech when i was 18, it was not anice time! Took so many years to have any confidence at all to be in the present of a group of people, even very close ones! And i still have reallybad days.
And yes, when im tired, it can be very difficult to get proper words together. Can be just be very frustrating indeed.
Keep going Rich, I know times can be difficult but have patience and when you are having a good day just enjoy your day. Sometimes we say "when we can do⌠we will be happy. But try to enjoy the moment and if you have had a good day then just enjoy it and forget about the bad days.
I know it can be frustrating, Dave gets very frustrated right now especially as we are in to Autumn and soon Winter. He said today that he feels useless but he is not because he guides me and helps me verbally to do practical things around the house, car and garden (which I have had to learn very quickly). So he is not useless he is my support. But I do realise that he spends a great deal of time alon
e as I work 4 days a week. That is not good for him but I need to pay the bills.
Anyway, I do hope you will soon have more good days than bad, you have been through so much and you are so young, I wish you well, Keep smiling!
Rich, this was great. Happens to me all the time. I am ok with numbers, itâs other info that gets jumbled. Itâs âniceâ to know I am not brain dead yet! The other day I was driving and forgot where I was going!!! I only drive around the neighborhood so I knew it had to be somewhere close. I finally remembered, oh the bank! Geez!
HI!
Rich thank you so much for the examples that you are giving usâŚDefinitely Im going to applied to my social life. and daily choresâŚI was until the point that I didnât want to talk to people or afraid to do something wrong disappointed people⌠Once again Thank you for sharing your examplesâŚ
yes i think the frustration can be the most strong emotion sometimes; you know what you want to say, but suddenly the words just arent thereâŚargggggggg!
Also, if anyone has any other tips, maybe they could be placed somewhere? Just a thought!
People who know me just wait patiently til the words come out correctly. the âworldâ thinks I am a bit off. LOL Oh I am a bit off. I just try to talk slooowwweeerrrr, but then I forget what I am talking about, vicious circle. Gotta have a sense of humor!
Wow â you said a mouthful â now if I can just remember it!! Yea I write notes to myself - alot! I screen the phone calls and if it for my husband I just let them keep talking to the machine so I donât have to take notes for him â lots of numbers! Thanks for putting a name to this.
really help that can be useful!
So please anyone who has some helpful tips, post them. I do believe theres nothing quite like that in amazon, web etc so maybe worth while expanding if its possibleâŚ
I just want everyone to send me good thoughts. I have my first MRI after my GammaKnife in 2009 next month. I hope it worked!!! Hereâs a kinda ironic story. I get my usual medical care at the county health center they wanted 1500 bucks for my MRI plus 135 bucks for the dr to read it and then 170 bucks for me to go to my neurologist there to give me the results. My surgery was done at Barrows neurological Institute (at the time I was really poor and got free medical care) I called Barrows to tell them it was going to be really hard to collect all that money. They said they send ALL their patients to an imaging place where an MRI costs 500 bucks and it only costs 150 bucks to see my neurosurgeon there, one of the top ten in the world! Now how does that restore your faith in the medical world. Their motto is Patients First. Apparently the countyâs motto is money first!
Thank you for the tips. That is very nice of you to help me and others with it.
I have a mild case, I know how bad it can be. I have not worked outside the home for the last 5 years due to this. I dont know if I could because of the issues and with this went back to school to reeducate myself. I am a class away from being a web designer I. I have another 15 mo for BA. But it has been a gruling task. Some of the things you mentioned I do already and some I have not thought of. Like the email thing. Please feel free to add any more info you can, I would love to read.
Hi Kat, well thats what i did - i was an engineer, but really had to re-educate and have been a graphic/web designer for over 9 years now. But its very difficult - being in a class is one thing, but to be constantly on the phone or having to take a lot of imformation from colleagues/clients, to me it can be physically draining, stressful and i always wait for a day when i simply wont be able to understand a most basic questionâŚwhich does happen. Then again tho, i dont always have to be on the phone every minute - sometimes i get no questions at all for a couple of days (yippee!) and thats why being a designer can really have its beneficts from an aphasic person!
Sorry what is this? My son's very forgetful and keeps convosations and discussions to a limit? Could he have this?
Pauline, sorry I'm not sure if I answered your question about driving again. The doctor told me when I start paying the bills again, I can drive. I was actually nervous driving for the first time. I didn't think I would be, but I was. I must of looked back and forth at least six times before I could back my car up, I was so nervous. Good luck to both of you,
Susan
Its called "aphasia" - Aphasia ( /ÉËfeÉŞĘÉ/ or /ÉËfeÉŞziÉ/) is an impairment of language ability. This class of language disorder ranges from having difficulty remembering words to being completely unable to speak, read, or write.
You should talk to your doctor about that.
I have had Aphasia for as long as i can remember. When I'm talking to some one, they always have to try to figure out the word that i can't remember. it reminds me pictionary, but trying to explian the word. I can't remember anything for the life of me. So, when I like a song and start singing to it, I always end up creating my own words when i forget some of the lyrics. My friends and family r great and I'm so use to it i always crack myself up and then they start cracking up too. I have always made tried to make the best of it, but it definitley can be frustrating at time's because the words are always on the tip of ur tongue. i always end up making up my own words and by now my family and friends know my certain Lingo. LOL!!!
OMG!!!! Thank you for sharing this! It describes me perfectly!!!
-Sue Bee
hi, rich! thanks for the tips. i wished i came across your tips 10 years early. i am in the medical field but it is different when it is you who is affected. my md's never told me i had aphasia but i always have known i have it. sometimes, when i am very tired or stressed, i can't seem to communicate well. i am terrified of speaking in front of groups sometimes. if i had to, it seemed like my mind blanks out for a bit and loose my trend of thought when i am speaking. and when i speak, sometimes the words don't come out right. it is getting better, though. i can write better than speaking. and you know what, i can not do Sudoku at all! but i can say-stickies do help a lot. thank you! you are heaven sent! God Bless!
rosie, i understand how you are feeling. it is crazy but funny. you wonder sometimes, we still find some humor in the midst of this problem. we just have to cope and adjust. God did not say life is going to be easy. but finding laughter and joy is a gift. You are a funny lady too. I hope to see you in March.
Oh yeah I Know Aphasia is not so Fun but on other times,Your friends laugh with u not at u! :)U gotta live with it I have for 14 years,it hit me when i was 35 years! Sprmnt (sheila)