AVM survivor

I can’t believe that I’m writing this.

I’m actually HEALED.

After 12 years of hell.
I had an AVM big as a lemon deep in my brain, too big to operate.
Due to the size and location it was too dangerous to do radiation therapy, it had to be proton therapy which wasn’t available in Sweden at the time.

BUT 3 years later 9 regions together bought it and I was the 5th person that did proton therapy and 3 years later I had a meeting with them. They said I had two options -
Do proton therapy again and possibly (high chance) sitting in wheelchair (paralysed in my left side)
or
Trust in new research that shows that proton therapy develops through year 4-6 as well.

And newly inlove as I was and all I wanted was to go back to the island I left to go to the meeting with the doctors - I took the chance to trust the new research.

3 years later the doctor called and I was declared healed. After 10 years of death anxiety. I was free.

I hope for you all to experience this joy I feel :heart_exclamation:

If you want to read more about my journey, my instagram for this purpose is milottesurvivedavm

10 Likes

Det är jo fantastiskt!

Well done you! That’s a long time to be kinda patient and get through it all. Well done for persevering!

Lots of love,

Richard

1 Like

That is absolutely wonderful news! It made my day, and I can only imagine how it made yours! Take Care, John.

1 Like

Awesome news !, I looked at the scan pictures and wow that AVM was large, I read a few of the other posts and you are really living life, traveling the world and smiling as you do this, Your posts made me smile so thank you, its fantastic to see someone come through a tough time and be positive !, keep doing what you are doing and have a great time !

Martin.

1 Like

So happy for you, and thank you for sharinv this wonderful news with us all xxx

1 Like

Wow!!! Congrats. That had to feel wonderful. I cannot wait to make the same declaration. Crossing fingers.

1 Like