I haven't found many people in South Africa with a brain AVM. Is there any way or rather the best way to reach out to them so they know they're not alone? I don't think AVM in South Africa is well known as I'm given to understand that there are also very few neuroradiologists, etc. who can perform the various tests (angio, embolization) here, although the AVM awareness is now on the rise and my neuro is one of the doctors who has experience with it. Any advice will be very useful. Thanks
Suraya,
Candice http://www.avmsurvivors.org/profile/Candice is in S. Africa.
Perhaps she may have suggestions.
Hope this helps.
Hi. Click on Members then Advanced Search. Then country…there are 25 members from South Africa!