Brain AVM rather peculiar, does anyone follow up avm without made any therapy?

General
1

Hi All,

we went to Paris to Mr George Rodesch to make hagiography for my son Nikolas 4,5 years old, and we discovered that his avm is peculiar and embolisation is not the proper therapy! Mr George Rodesch contact
Pr. Valavanis
Pr. Sodeman
Pr. Bacard
Pr. Orbach
received various therapy, gamma knife now, wait 5 years till Nikolas be 10 years old, open surgery.
can i ask if someone has a avm peculiar and what treatment you decide?
Eleni

i would like to ask if other children has brain avm rather complicated and how parents face and handle child daily life?
does your child go to school?
does your child makes any sport? swimming, tennis, etc?
any advice that you can share with me?
thanks in advance

2

Eleni, since you joined and first posted, we have moved to a new platform, and the profile you completed in May was not imported. Can you remind us of your son’s condition? There is one post that you made in May which gives some information, but you may want to say more to give your fellow members a better idea of what is going on with Nikolas.
I hope some of your friends here will be able to give you some feedback on your son’s particular type of AVM.
Seenie from Moderator Support