Hello I was diagnosed with AVM(unruptured) back in 2021 and supposedly probably had it since birth.
My company is having a whirlyball event next month and would love to play. In 2018, Years before my AVM diagnosis, I played whirlyball and loved it obviously not aware I that I may have had AVM.
I was a wrestler in HS and also used to weight lift and would like to start doing that again but maybe limited due to my AVM diagnosis now
Should I play whirlyball next month or refrain?
Could I have gotten an AVM later life and not at birth? Since I played a contact sport and weight trained/weight lifted in HS. Btw Im 48 now.
That is an incredibly difficult question, and probably no one knows the definitive answer. My AVM bleed at 48, played a lot of hockey, football, martial arts, swam, lifted weights and none the wiser. Out of nowhere my AVM decided to show itself, and anyone who knew me could not believe when I ended up in hospital with a brain bleed. Really, you need to be completely comfortable with your decision, knowing what you know. I know not a lot of help, but we also have to live life! Take Care, John.
Firstly, I have to agree with everything @JD12 states āā¦no one knows the definitive answerā¦ā.
Some people can go their whole lives without knowing, for some a bleed can be more āa slow leakā, for others a bleed can be catastrophic. For some it can be activity induced, for others they can be in bed, asleep. Location and type can play a huge role and this all needs to be taken into account when making such an assessment. That assessment needs to be made by your medical team, someone who knows your medical history and can take it all into consideration when making that assessment.
Hi there. Good to meet you. Iām Lulu and Iām in the UK. I have a cerebellar AVM and hydrocephalus for which I have a Shunt. Iām a bit of an old-timer here cos Iāve known about my medical problems for well over 30 years.. My understanding is that most AVMs are present at birth. But they might not show themselves until years later. I only knew about mine early cos it caused the hydro and I needed an op to fix that when I was 14. Not everyone would agree and Iām not a medic. But I was once advised against lifting weights as its a lot of strain on the head. I had both my children by C-Section for similar reasons. Iām afraid Iām not familiar with Whirlyball though so canāt advise on that. Sorry.
BIG +1 āā¦Not everyone would agreeā¦ā that line of correlation is exactly why I say
I too had neurological symptoms over a long, long time but no correlation and even after having a confirmed diagnosis, no one would join the dots. I also have a shunt and have found itās as if the medicos often see the need for the shunt and the cause as 2 separate issues. I could easily see the relationship, but they canāt/wonāt. It can be frustrating sometimes when they focus in one direction and minimise the other. I get that a lot.
Yes I completely agree. Its all part and parcel of the same blasted thing isnāt it? They do really need to consider both issues in tandem. Still at the time I had my first shunt fitted the medics referred to my AVM as a ābirthmarkā cos they didnāt know what it was! Hmm.
Every neurosurgeon Iāve spoken to has said that exercise is generally good even with a AVM, unless you have specific risk factors and have been advised otherwise. Ball games, running, moderate cardio are probably fine as long as you donāt go 100%, you just need to remember to stay hydrated and that you shouldnāt push yourself to extremes. Dehydration perversely increases bpā¦my bleed happened running while very dehydrated and pushing myself to 100% on a hill ā¦..but I continued running once I recovered with no further problems. But heavy weights and wrestling can cause significant strain and are more likely to raise intracranial blood pressure so it makes sense to be careful or even avoid them.
āā¦Not everyone would agreeā¦ā that line of correlation is exactly why I say
ā¦..but I continued running once I recovered with no further problems. But heavy weights and wrestling can cause significant strain and are more likely to raise intracranial blood pressure so it makes sense to be careful or even avoid them.