I have finally received a date for my crainiotomy, Oct. 7th. This is a bitter-sweet victory, after going through gamma knike, angiograms and assurances that the AVM would desolive in 3 years. Then the pat on the back by the nerosurgen At Emory in Atlanta GA, stating that he was sorry. After getting turned down by about 6 nerosurgens because my AVM was to complicated, I was lucky to find Dr. Malik with Henry Ford Hospital in Detroit MI. He studied my MRI for approximately 1 hour, his nurse informed me that he raily spends so much time looking at MRI, I feel very confident that he is the man for the job.
I have a bad case of pre-op jitters and would appreciate any words of wisdom, prayers, well wishes , positive engery, and experiences.
Mary, I am scheduled for my embolization on 9/28, followed by crainiotomy on 9/29. It is very natural to have the jitters, I know I do. When I stop to really think about the actual procedure, it scares me. But having doctors you feel confident with is a huge help. I wish you well and look forward to hearing about your successful surgery!
Mary, I just found out that I will be having my craniotomy in the next couple of months as well. I completely understand your jitters, and I hope everything goes well. I wish you the best in your surgery!
My AVM ruptured and I had about a week to stew about the craniotomy they were going to perform on me, so I can understand your jitters!!! Yes, it sucks, but before you know it, you will be out of surgery and on the way to recovery!! Hang in there and think positive thoughts and try not to do too much googling and internet research because I did that and it depressed me even further, but that was just me! Have faith in your surgeon and his skills. It sounds like you tried to find the best surgeon who actually WANTS to take it on and has confidence in his abilities!! That’s good!! You’re gonna be fine and I think everyone on here will be sending good thoughts and prayers your way, once Oct 7th rolls around.
HI, MARY"PEACE I LEAVE WITH YOU; MY PEACE I GIVE TO YOU; NOT AS THE WORLD GIVES DO I GIVE TO YOU. DO NOT LET YOUR HEART BE TROUBLED,NOR LET IT BE FEARFUL.(JOHN 14:27) THEREFORE HAVING BEEN JUSTIFIED BY FAITH, WE HAVE PEACE WITH GOD THROUGHT OUR LORD JESUS CHRIST (ROMAN’S 5:1) BE ANXOUS FOR NOTHING, BUT IN EVERYTHING BY PRAYER AND SUPPLICATION WITH THANKSGIVING LET YOUR REQUESTS BE MADE KNOWN TO GOD. AND THE PEACE OF GOD, WHICH SURPASSES ALL COMPREHENSION, WILL GUARD YOUR HEARTS AND YOUR MINDS IN CHRIST JESUS(PHILIPPIANS 4:6-7) THESE WILL HELP GIVE YOU SOME PEACE WITH YOUR PRE-OP JITTERS GOD BLESS
Hi Mary, Sounds like your neurosurgeon is doing diligent planning of your surgery. That must be comforting. The surgeons that inspected my MRI’s when I was interviewing only took about ten minutes. I studied my own MRI’s, read a book about the anatomy of the brain and then went back with questions to satisfy myself. Sounds like you are in good hands and you have a neurosurgeon that really cares for your prognosis. Thinking of you.
A special thank you to all of you for the kind and comformiting words you have sent my way. They have helped alot. God Belees all of us!
Only one week to go.
When you think about the actual surgery, what they have to do and all, it is scary. But really, if you just let them do what they need to do and not dwell on the details, it’s a bit easier. I am recovering so quickly from my crainiotomy it’s amazing. And you’ll read on this site about others that have recovered even faster than I. And now it’s all over…no more AVM for me. That’s the good part. Just get that nasty thing out of there…focus on that and celebrate. You’ve chosen a good doctor, you’ll have many of us praying for you and here for support as you recover, and soon it will be gone. You have a great attitude…you’ll be just fine.
You will be in my thoughts and prayers. I hope all goes very smoothly for you during surgery and after! Keep focusing on positive things/thoughts, knowing you’ve came this far already and, by the grace of God, hopefully the surgeon will be able to remove all of it and you’ll be AVM free (YEAH!!!)!
I will be praying for you. I’m sorry your experience at Emory was not a positive one. They saved my life 22 years ago. You have the advantage of all the advances in medicine over the last few years. For example, there was only one MRI machine in all of Atlanta back then. It was in a semi-truck and each hospital got it one day a week.
I had brain surgery to remove the AVM. I am soooooo glad it’s gone. I will be PRAYING for you on the 7th!!!
