For those who have AVM,it tends to change the whole scenario of life.Number of things tend to come into ur mind. You feel frustrated , dissapointed visiting different doctors for correct treatment. Yet u don't find any answers.The statistics shows 3 person per million people suffering from this disease. After several yrs of treatment u tend to think where can i find a doctor who can fully cure me?.In my case, did several surgeries and embolizations. Yet not getting proper results..In this 21st century, Why the research centers cannot find a proper medication for AVM? Just think what had happened to our fellow brothers and sisters who came before us?.Its a real shame for not getting proper medication.Don;t know where this journey of pain will lead us to? We are just helpless bunch of people who cannot do anything but pray!I hope someday we will see the light which will bring peace and happiness in our lives.
There are a couple of things we can do besides pray, Nabil. We can research and share information. This can improve our level of care and someday help us to find a cure. There are nearly 5,000 of us here, and about 150 members with facial AVMs. By reporting our experiences, we can help each other.