Does anyone have an AVM in their right groin?

[DickD]

Other conversations about genetic links, which could be helpful…

Genetics

Hi all! I hope you are all well. Just wondering if you guys have been advised to or have had genetic testing regarding your AVMs and what they actually tested for in general? I was recently advised by a neurologist, during a second opinion that I should have been referred for genetic testing to rule out Von Hippel-Lindau syndrome (VHL). Because of my family history of renal cancer and my history of recurrent bilateral renal AVMs apparently it should have been investigated long ago…however as…