Hi JD!!!!
Welcome to the site, although I'm sad to see it be needed. Okay, so I'm treated by Dr. Haskal. I've also spoken to Dr. Yakes and so here's my situation and then you make your own decision. I'm of the firm belief that everyone is bias to a certain extent by their own experiences so take it for what it is.
I have a high output peripheral AVM that reaches from my pelvis down to my toes. I've had extensive surgeries since your son's age...which was when I was diagnosed after quite a lot of heartache believe you me. Dr. Phil Guzzetta at Children's National Medical Center is who treated me, and you might want to contact him as he's closer to you and a valuable asset. Tell him I sent you!! Hehehe, I'd be excited to see how he is. He's a vascular surgeon who worked extensively on my AVM, but the biggest thing they said to me (back in the 80s) was that because I was growing, so was the AVM. So, surgery ended up not being the right thing for me, and at the time they said that amputation was probably not a good idea either.
Fast forward to now. I found Dr. Yakes while very knowledgeable somewhat for lack of a better way of saying it...condescending? I'm a PhD candidate, have been dealing with my AVM for over 25 years and the fact that you speak to me as a child, well...in my humble opinion it's insulting. He's very aggressive with his treatment, and while alcohol oblation works very well for some, he didn't even gander a thought of doing anything else with me. Alcohol is terribly destructive, especially in the human body, and so precision is a must. While he's very precise in the interactions I've had with people, when you miss...it's terrible. Not to mention, the more aggressive the treatment, the more painful the recovery.
With that being said, there's also something very valuable in being close to home. I was treated extensively as a child, and was sent up to Boston Children's Medical Center for a follow up and it was terrible. I wasn't in a familiar place, there wasn't the appeal of going to the monuments after treatment, etc. etc. That's what did it for me as a kid, what can I say. It made things much more nerveracking and frustrating at least for me. I took sometime being treated at Hopkins too, but then my doctor got sick. I couldn't take the frustration of canceled procedure after another.
My mom started working at University shortly after that and we ran into a Dr. Patrick Malloy who then treated me for close to 7 years. He was fantastic. He's now in the VA system, working on guys and gals coming back from the war with vascular abnormalities from trauma. From there, I was stuck. I went back to Hopkins and the usual disappointment was there. My wound care doctor referred me to Dr. Yakes, but I couldn't get the incling out of my head that I didn't want to travel. That I shouldn't have to. That the doctors and nurses in the Maryland/DC area are some of the best in the nation, and that I should take advantage of that. So, I pursued more and more, and made a clinic appointment with Dr. Haskal. He's the editor in chief of the Journal of Vascular and Interventional Radiology, so he's on the cutting edge of research. He basically said to me at that initial appointment a few important things:
1. Why didn't you come to me sooner.
2. I will be able to treat you, but when I get in over my head I will vocalize it and refer you to one of my colleagues that is more knowledgeable in the area (including Dr. Yakes).
3. We will do as many or as few of these procedures as you're comfortable with until you start feeling better completely.
4. You will never be cured. AVM's are treated in the extremities, they aren't cured. Especially with a case as extensive as yours is.
His vocal nature and distinct up front charisma is what sold me. He's quick to say he'll use alcohol when he deems it necessary, onyx, glue, or coils when he can't use anything somewhat more permanent in nature. He's not quick to take undue risk. It doesn't hurt that I'm a grad student at the Med Center as well so I'm comfortable there. You might want to explore Dr. Banovac at Georgetown as well though. He was on my short list of people that I wanted to see if things didn't work out at Maryland. There's also a Dr. Ignacio at GW Med that specializes in pediatric interventional work.
That's my story and I'm sticking to it. Hope it helps. Lemme know if you need anything else.