Well another test done. Went well I guess. The left side of my face was twitching to like there was no tomorrow and my jaw kept tightening up. Not sure what that means. The tech kept telling me to relax my face. Like I could control it. Hopefully it means nothing. It was part of why I had to go in for the test in the first plac other than the blackout spells I have been having. Now I just have a bad headache from the strobe lights. Next appt. Neurosurgeon on the twenty third.
Good Luck, Tonna. I found it funny too, when they told me to relax. What are they thinking. That we can flip a switch and turn it off…I wish. LOL
In the weeks before my AVM bled, I had an uncontrollable twitching in my left eye. I just thought it was stress and eye strain from the computer. I told my neurosurgeon and he said it could have been a symptom of the blood on my brain from the bleed. I tell you this not to freak you out or anything but that is the explanation they gave me. I hope all goes well!!
I’ve had a lot of twitching of my face mostly left eye and cheek but occasionally right eye and jaw clenching. my neuro said it could be any number of things but wasn’t likely related to the AVM though it was a brief discussion and we were focusing more on the tremors and numbness in my left side and discussing treatments and rather than minor symptoms, though I still believe it had something to do with possible past bleeds or tightening around some nerves. haven’t experienced them since my first embolization 3 days ago but could be the painkillers making me unaware, donno. good luck to all and best wishes.
Nicole R said:
In the weeks before my AVM bled, I had an uncontrollable twitching in my left eye. I just thought it was stress and eye strain from the computer. I told my neurosurgeon and he said it could have been a symptom of the blood on my brain from the bleed. I tell you this not to freak you out or anything but that is the explanation they gave me. I hope all goes well!!
Good Morning Tonna. I was wondering if you could tell me a little more about your blackout spells. I too have them. Let me tell you that I don’t have an AVM (my dad had the AVM) but I did have two brain aneurysms (coiled and clipped).
The easiest way to explain it is like i’m falling asleep. i could be sitting there and the next thing i know i’m out some times for a few seconds and at times for a few minutes. I don’t remember anything. Acouple of times i have been able to hear things going on round me but can’t respond. mostly im out. They upped my seizure meds. so I don’t really have the spells any more. One doctor says their seizures another says their not. so im sot sure what they are.
Donna Mignone said:
Good Morning Tonna. I was wondering if you could tell me a little more about your blackout spells. I too have them. Let me tell you that I don't have an AVM (my dad had the AVM) but I did have two brain aneurysms (coiled and clipped).
That is exactly what happens to me. One minute I am awake and alert and the next I am out but for much longer periods of time than you. Usually about 25 minutes. I too do not remember anything. I also had the same problem getting diagnosed. One doc said seizures and one doc said brain injury. Well finally last month I had an EEG that concluded that I was having seizures and I have resumed my meds. Also I am very tired when this happens. A different tired than the norm. What I am trying to say is a tired that is not corrected by taking a nap. As an example, my last episode was on a Friday afternoon and I spent most of Friday and Saturday in bed. Finally on Sunday afternoon I was up and doing some chores. Thank you so much for sharing.
Tonna Wenger said:
The easiest way to explain it is like i'm falling asleep. i could be sitting there and the next thing i know i'm out some times for a few seconds and at times for a few minutes. I don't remember anything. Acouple of times i have been able to hear things going on round me but can't respond. mostly im out. They upped my seizure meds. so I don't really have the spells any more. One doctor says their seizures another says their not. so im sot sure what they are.
Donna Mignone said:Good Morning Tonna. I was wondering if you could tell me a little more about your blackout spells. I too have them. Let me tell you that I don't have an AVM (my dad had the AVM) but I did have two brain aneurysms (coiled and clipped).