I’ve been approved to come in and have another embolization toward the end of March, this will be my fourth one. Very scared, the last three have been incredibly traumatic in the pain post-op has been agonizing. I’ll be getting treated at the adult Vanderbilt hospital this time instead of the children’s hospital. I’m hoping that I will receive better pain management this time around. Hoping that I will recover well and will not be left disabled as a result of the procedure. I know that losing use of one leg is not the end of the world but the thought of that and trying to adjust and cope with that terrifies me, but it is also something that I have had to prepare for since my diagnosis since it has always been a possibility. Hope for the best prepare for the worst as they say. At the very least I will be able to keep my heart healthy and strong. My surgeon is hoping to reduce the size of my AVM which be great because it has at least tripled in size over the last few years and has made a life very inconvenient. I need more and just one surgery but right now I’m going to just focus on the one ahead of me and try to take it one day at a time like I always have. I find that trying to look too far ahead into the future is rather pointless and just overwhelms you. However if I’m able to recover from the surgery and future surgeries well with no negative side effects it would be nice to feel like I have part of my life back. My surgeon is also hoping that he will be able to relieve some of the pressure on my sciatic nerve to reduce those symptoms as well.
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Utterly marvellous! I’m so glad that a way forwards has opened up! I’m keeping everything crossed that the date doesn’t move, you have a good experience, great pain management and a successful and worthwhile outcome!
Hang in there! You’re worth it!
Richard
Ty
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We all are cheering you on! Best of luck to you.
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Thank you !
Wishing you all the best! One step at a time
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Thank you!