I've been dealing with seizures as a result of the AVF/AVM rupture. I've been on several drugs in many different combinations. nothing is working, I am still having seizures. In the month of December I had 4. My Neurologist has referred my out to a specialist who will evaluate me for further treatment options.
The tried and true: Temporal Lobectomy, remove the seizure causing damaged lobe. problem with that is the hemorrhages caused damaged to two lobes and in multiple areas of those lobes.
Vagal Nerve Stimulation
Neuropace
I don't even know how to accurately describe the other two, other than mechanical devices that get inserted in the body that provide electrical currents that attempt to disrupt seizure signals.
So - Open My skull again and remove part of my brain or turn me into a cyborg?
Let's see what the new Doc advises.
Jaime, please repost this on the seizures subgroup. Temporal lobectomy sounds really extreme. You should definitely seek more opinions. I hope your seizures can be controlled soon.
Oh Lord. I am coming up on 6 months since last seizure. Hoping to drive again. I can't imagine having that many that close together. Please keep us posted on what the recommendation is and what you decide to do.
Try and watch your sugar and carbs to help with seizures I have been on a strict diet and its helping along with exercise ihad my bleed 14 months ago hang in there it’s a slow go stay positive