As my profile states, I had a brain aneurysm a while back. Ever since my bleed, I have been prone to seizures which are controlled by medication. I am wondering if anyone else has had this issue as well? This also begs me to question the reasoning behind this. As in, why am I more prone to seizures or even have them compared to the average person? (Not comparing myself to the average person of course)
Since it has been almost 30 years, I doubt I will be coming off of the medication, I believe this is more of a permanent side effect of the injury. One can always pray for miracles though
I have seizures too even though I didn’t have a bleed. Half of AVM patients discover they have one from either a bleed or a seizure. At least that is what I have read. A seizure is how mine was discovered. I am pretty sure anything that irritates the brain like tumors, AVM’s, bleeds, anything that is not supposed to be there can cause them. Someone can correct me if I am wrong about that.
Hi Benjie
My doctor has me taking anticonvulsivants. I have survived 4 strokes, but I had only one convulsion. They told me that the treatments and strokes created an epileptic focus they say I have to take anticonvulsivants for ever. I believe in miracles. I hope my answer helps. I will pray for you. My first stroke was in 1984, the last two on November 2002, but the anticonvulsivants were prescribed around 2004. With all my love Angie
I no the feeling. I’m stuck taking pills forever to prevent me from having a seizure. I’ve gone over 10 years without having one. The last one I had was because of the difference between generic pills and brand name. The doctor best explains how my pills control the brain cells function. It’s sort of like a traffic light. If I take my meds then everything is under control but if I don’t all lights are green and then the crash. Leading to the seizure.
Hi, I am 61, AVM bleed at 14, 2 craniotomies, epilepsy/meds ever since (varying success), lots of emotional/memory issues, probably will be on meds for life, good quality of life. I’ve lived through probably more than 350 grand mal seizures.
It’s been a long struggle that I could have made easier by being more peaceful and accepting of my body. I’m getting to the point where I can see all the issues as a gift, not a curse. We have a lot to share and hope is contagious. Greg
Hi! It’s good to hear from you. I’m with @Melissa_Joyce on what causes seizures – I think any kind of disruption or interference in the brain can drive these things – but I don’t know any medical detail, it’s just how I understand it.
Hi Benji! I had a AVM bleed that caused left side paralysis, that was 30 years again, i have been on seizure medication since then, i take 2 different ones,i would much rather take the medicine than have a seizure.i personally feel that taking the medication is part of my daily routine. It could always be worse,the brain is a very complex thing.
Generally any brain related trauma or abnormailty increases chances of seizure activity… suffering from an Aneurysm or AVM or even a tumour could result in seizures and is quite normal in these circumstances… at this point a medical expert in this area would be the best person to get advice on individuals circumstances as the medical world is advancing daily… God bless!
Yes. I started off taking anticonvulsivants when I was first diagnosed with epilepsy at age 13. (I had stood up from taking a strenuous test in a special room, stretched, and my shoulder hit the corner of a book shelf and I slide down and began shaking). Drs said it was a grand mals (sp.)? This was back in '93.
I have been in for sleep studies where they hook you up to a bunch of wires and they detected spikes in brain activity (I think EEG?), but then they said that I went back into normal status, so the medications were keeping me out of seizures, so they effectively are working. Thank God they are controlled with medication.
I’ve been moved around to several different medications to help fit and suit my other medications. I think one made me excessively drowsy. The one I am on now is working and goes well with my chemistry.
How effective is your medication at preventing seizures?
I had only one seizure before the doctor prescribed the medication. I am at a low concentration of medication. I presented allergy to most anticonvulsivants. I am currently taking Keppra ( Leviteracetam) 500mg in the morning and 500mg at night. When I started with Keppra they told me to take 1500mg per day but I presented an allergic reaction so the doctor reduced it to 1000. It´s working fine. With all my love Angie
