Does anyone else experience eye shake, I started to get this yesterday, it only lasts a second or two and seems to be the left eye. Its kind of like camera shake. Very disturbing and irratating especially when I am trying to do something like writing.
Hi John,
Seems like you and I have a lot of the same things. Must be the location of our AVM. Mine is the right temporal lobe also.
I get this quite a bit. Never had it before my ruptures but now I have it.
You are right, it is very disrupting. Mine lasts anywhere from a few seconds to a couple of minutes.
Minei s mostly in my left eye and causes my vision to be blurry for the time.
So far I have found nothing that works to stop it.
I just have to wait until it is over.
I do try to cover the eye with my hand to help the visual dispruption during the shake.
Sorry I cant offer any solutions but can empathize with what you re going through.
Well at least I am not imagining it, mine are only for a second or two so I really dont get chance to do anything about the them. You are probably right about the location being the cause.
Mine is left temporal lobe and I have also had some annoying eye issues. One of them is best described as a simple “focus - out of focus - back in focus” in a matter of a second or two type thing. The one that seems similar, yet different than what you describe is more of an eyelid twitch. It comes and goes and while it has done so both before and after surgery, it happened far more often before surgery. Most of the time it would be my upper eyelid and it would just twitch repeatedly for anywhere from seconds to hours. It wasn’t enough to make focusing on things difficult, it was mostly just really annoying and there was nothing that I could do about it.
John , have you discussed this issue with your opthomologist or neuro-opthamologist ? Could be worth a conversation and a look see .
Be good to you . Take care of you .
The shaking is called nystagmus. That was the symptom that Lizzie had that alerted her doctor that something was wrong inside her brain, so he ordered the MRI that discovered her AVM. I think it’s from pressure on the brain stem. I’d talk to your neurologist about it soon.
My son is almost 8 years old. His AVM ruptured on his 2nd day of life. His development has been nothing short of miraculous. In the last month he has been complaining of a similar behavior with his vision. We are ruling out seizures. Have you addressed this with your neurologist?
Jake M said:
Mine is left temporal lobe and I have also had some annoying eye issues. One of them is best described as a simple “focus - out of focus - back in focus” in a matter of a second or two type thing. The one that seems similar, yet different than what you describe is more of an eyelid twitch. It comes and goes and while it has done so both before and after surgery, it happened far more often before surgery. Most of the time it would be my upper eyelid and it would just twitch repeatedly for anywhere from seconds to hours. It wasn’t enough to make focusing on things difficult, it was mostly just really annoying and there was nothing that I could do about it.
Hello John and Susan (and all),
I had an embolization and radiation this July for my AVM. My AVM is also located in my right temporal lobe, on the dura. I just started experiencing eye shake in my left eye about a week ago or so. Mine is actually much worse when I bend my neck and look down at something while reading - not a great thing for a librarian! The jittering does seem to affect my left eye’s focus. Very disrupting. I hope it does not last forever.
Best,
Melissa