For diagnosed non bleed AVM survivors like myself at some point we need to make a decision on how or if we would like to treat it.
After reading Hanne's excellent post Photons vs Protons, Whats the difference? I decided to throw in my two dimes worth about how I made my decision on choosing Gamma-Knife vs Cyber-Knife.
For what it's worth I would like to add my opinion on Gamma-Knife vs Cyber-Knife (the differences of the technology) as these were the two SRS options that were considered to be a good fit for my "deep compact AVM" (1 square inch). If I were to put all 4 Neurosurgeon that I interviewed in the same room there would probably be a lengthy debate on which was best for me including embolization + craniotomy, but I chose Gamma-Knife based on the facts that made sense to me.
We don't know what the future will bring or whether the newer technology will overtake the old, but I had to make a decision for my case and this is what I came up with in two months that helped me chose.
Cyber-Knife:
Invented in the early 1990's less than 20 years in service with some good results. I could find only limited data due to the fairly new technology. The Cyber-Knife was designed to target lesions anywhere in the body. A newer technology allows a less invasive face mask vs the scalp fixed halo with the Gamma-Knife that fixes the head in a more ridged position. However the Cyber-Knife tracking system exposes the patient to multiple x-Ray's throughout the session each time the beam is repositioned to make sure the beam is on target. The Cyber-Knife has only one focused beam which must be fired from one angle at a time thus lengthen's the time of the session or may require more than one visit depending on size.
Gamma-knife:
Invented in 1968 with decades of great results and improvements in recent years. The Gamma-Knife has approximately 200 narrow focused beams that can target more of a lesion at one time than the Cyber-Knife. The Scalp fixed halo is not a pretty thought but to my understanding is more accurate vs the time delays in between the Cyber-Knife re-position x-Ray's. Multiple focused beams allows less time on the table and less likely to need multiple sessions to irradiate the entire lesion.
I'm not putting down the Cyber-Knife as I think it's an amazing machine which dose have a few advantages such as it can reach more angles than the Gamma-Knife can. It can also reach lesions anywhere in the body and amazingly track lesions in the lungs while the patent is breathing.
According to my research a typically Cyber-Knife has 150 to 250 angles per session. I understand that each of those beam's would have to be a slightly stronger to get the same dosage as what the Gamma-Knife delivers in one session. My Gamma-Knife treatment on 9/14/2010 lasted 1hr and the table moved about 6 times. Approximately 10 mins of 200 beams x 6, that's 1,200 angles I hope they got it all :) Time will tell if the Cyber-Knife will be the new Gamma-knife but as far as I'm concerned they are both awesome.
Hi Brett,
Thanks for the breakdown on these 2 procedures. My brother is battling AVM, he had a rapture and was at Stanford hospital and they recommended cyberknife. However, we were reluctant because it’s fairly new technology. We seeked a second opinion from UCSF and they discouraged any treatment because his AVM is located close to his optic nerve and many other major nerves. He is already blind in one eye, has vision problems in the other… We want him to get treatment but we don’t want to expose to him to any unnecessary danger.
Thanks.
Yane.
Best of luck for your brother Yane. Make sure you get plenty of opinions before choosing a treatment vs nothing… Dr Apuzzo at USC in LA would be my recommendation since you are pretty close…
I do undrestand your position as My sister has been suffering from large AVM and had undergone embolization in AIIMS, New Delhi, india.It partially reduces part of the AVM. But, unfortuantelly , it got failed in the 2nd embo attempt. Now doctors adviced us for Gamma Knief for obliterate residual AVM but at the same time warned us for risk associated “paralysis” as AVM is near part of brain which controls limb movement. Please share your experience and advice.
Thanks
Ankur
Yane said:
Hi Brett, Thanks for the breakdown on these 2 procedures. My brother is battling AVM, he had a rapture and was at Stanford hospital and they recommended cyberknife. However, we were reluctant because it's fairly new technology. We seeked a second opinion from UCSF and they discouraged any treatment because his AVM is located close to his optic nerve and many other major nerves. He is already blind in one eye, has vision problems in the other… We want him to get treatment but we don't want to expose to him to any unnecessary danger. Thanks. Yane.
Thanks Guys,
We had an appointment with Dr. Lawton at UCSF today, he still advised to wait it out since there’s nothing major going on with my brother’s AVM. He did mention the risk of paralysis and or complete loss of vision being associated with any treatment option at this moment. So we’ll wait and see…
Hi A Rajkhowa,
I had the option of GK, CK or surgery. As it was explained to me, with surgery they could go in and cut it out and it would be all done but all the risks and complications will be up front. With GK it is a slower process but it is also more gentle on your brain and it gives your collateral blood vessels a better chance to rewire your brain with less risk of stroke. Each case is different but in my case this is what helped me make my decision.