Hi all,
I’m Edoardo, nice to meet you
While I don’t have any particular question beside that
if you like, you can share your experience with Gamma Knife here or give me some advice with life
I would like to condivide my experience, because reading your stories is helping me go throught these “particular” days.
I wouldn’t say necessary hard or heavy days: it can be, but probably it’s not a death sentence, but it is something that make us wonder and reflect a lot,
and each of our stories has a personal message to be disclosed.
I’m 32 years old male and, me too, I have been called to face this battle.
My avm is in thalamus, is <=1 cm of diameter and, i think it gave me zero noticiable symptoms in my life.
It has been an incidental finding during an MRI two years ago, first diagnosed as a probable DVA (development venous anomaly),
then, one year and half later, labeled as supicious AVM after a more precise exam with MRI Tesla machine.
Then one month ago the final diagnosis through agiography.
Fun fact in the past I did agonistic boxing and powerlifting, so I recived lot of blows and pressure spikes in my head, but my small AVM remained intanct, no sign of past bleeds.
I call myself lucky, or maybe in these years shw wasn’t allready with me: one thing I understood is that little we know about these malformations.
Howether,
Due to critical position and inacessibilty of my malformation with Niguarda equipe, in Milan, Italy (I’m from Genoa so a few kilometers further south, right on the shores of the Italian Nordic sea), we decided to cure and to go for GammaKnife.
This adventure
is not the only recent novelty in my life: me and my partner are expecting two babies. It is early to say that for sure because it is only the 7th week plus we had assisted reproduction (we had tried for more than one year) but this is a great news that gives us hope. In the deep on my consciousness I’m excited and I will to see them both, but
the dark side of this story is that now I’m really focused on myself, and my fiance seems to don’t understand my worries and we do nothing but argue,
this really makes me reflect on how much she cares about me.
If i was her I would be only supportive and comprensive, In this delicate period, I don’t think she is into my emotions, and that should reflect our future.
If I look inside me I’m a tangle of emotions so I can’t judge if it is time for us to break or what else.