How big is it? I wonder why they did not do both but I am sure you dont want to be in operating room for a long time. When do you go for your mobilization?
Angela
Hello Swami Jim
Thank you for prayers. I am trying to stay positive and taking time to heal. Hopefully the next procedure wont be so long and painful. I am doing much better today.
Thank you
Angela
I go for my first emobolization on February 6th. The doctor is hoping that he can find a "good" artery to shut down first; whatever that means. A lot of arteries are feeding into it; it looks a bit strange to me
Hope you’re doing well! Angios are not fun, I have had about 5 and counting… But still are the best way to find stuff out! Pray for you that everything is going well <3
I've had angios done too. Don't worry Angela, we will be praying for you. I hope everything turned out well! Keep us in the loop. love, Pepper
Wow five! I am doing better the last few days I hope I dont have to go back for another six months. It is shocking how much they can see via the angiogram compared with the mri/mra-
They could not tend to everything so I know I have to go back for at least one more round
Angela
Hi Pepper
they got most but I will to back between 2 to 6 months I heard different times from two different doctors...I am hopeful for the six month date. I am still sleeping a great amount but I guess I must need it. They left one part that had some bleeding but are hopeful it dies off but the way things have been going I am not going to count on it. Were you awake for your angios?
Anglea
Hi, I tried to see Dr. Marks, but I will see Dr. Ho instead.
It sounds like you have Pusatile Tinnitus like I do.
I hope it goes well for you.
Lori
My first day on this site. Glad I found it.
What is an CT Venogram? Is is different from a CT and how it's done?
I have Pusatile Tinnitus and had an MRI/MRV/MRA where one Dr thinks it's a Distal Sigmond Sinus. I can't even find infomration on what that is. I am going for a second opinion at Stanford next week.
I think I might have to have a CA. which scares me.
Anyone else have Pusatile Tinnitus and went to Stanford or UCSF?
Thank,
Lori
Hello Lori
Welcome to the group. Sorry you can not get to see Dr. Marks. I think I only did cause I also had a rare stroke last year and I see the head of the stroke dept. When you see Dr Ho and whatever procedure he is planning on doing ask him how many times has something like stroke or death or facial paralysis happen during his procedure. Is someone going with you?
I did have the tinnitus which got worse it started in June and my head pain changed too. Then I was taken off blood thinners at the end of Sept and it became worse so they did an MRA which showed retrograde blood flow which only happens in 10$ of cases. I had lost my left transverse sigmond sinus vein during the stroke. The reality is they wont know anything for sure until they do the angiogram. I think he is referring to the end part of sigmond sinus. - Both UCSF and Stanford have great doctors for this.
The angiogram they first cut you in your groin to put a a line with a camera and then dye to see where the problem is and you are awake during this part. Then they knocked me out and treated mine with medical glue and with pnyx. I had bad head pain for two weeks and just got a nerve block yesterday to help with the pain but its too early to tell if that worked. Again since I had a rare stroke I was still having head pain with that so they want me to not be in pain cause it can cause chronic head pain
If you have any questions please dont hesitate to send them my way= I will send you a friend request so we can chat
Angela