Hopefully everything will go well - I am seeing Dr. Marks at Stanford tomorrow at 6am ( I guess its good to be first on the list) I told my husband Jim if anything goes wrong or he has questions that he wants to check with people who have had angiograms to log on to the site and ask away.
Thank all of you for answering my questions and putting me at ease with Dr. Marks.
Hopefully I will have good news to share soon!
Thank you
Angela
praying for you!!
Thank you so much for the prayers!!!
Hello Angela, all the very best wishes for tomorrow. I have had numerous angiograms and truly, it's the best way to find out exactly what is in there or not in there! I look forward to hearing your report and my thoughts and prayers are with you! Lesley.xx
Sending prayers for good health and good news!
Hi Angela...I also have had several angio's. They gave me a med that made me take a little nap and then they woke me up so I could see the picture of my AVM. When they were getting me ready, the angio team talked about times that made me laugh..they were very funny! They know you are scared..so they do what they can to relaxe you. Afterwards, whatever med they put me on made me sleep. Thank goodness you are having it so early...mine where always late in the day... Stay strong..you can do it!
Good luck to you. Let us know how it goes.
It's always NICE to have the co-director of neurosurgery at a great facility work on you!
I got tickled when we were at Stanford. Chari was going into surgery the following day. We met with the anesthesiologist, who reminded us that although scheduled at 6AM, might be bumped due to an emergency operation. As she was saying this, she flipped through the chart to see who was her surgeon and said "Oh, I see you have Dr Steinberg (Stanford's other co-director neurosurgery), you won't get bumped!"
If you haven't met Mary (Dr. M's RN), you will. She's a super lady! Tell her Ron and Chari from KS say Hi.
Best Wishes,
Ron, KS
Angela,
I'll be thinking of you, cheering you on & knowing you're in GREAT hands!!! :)
Patti
I would like to wish you all the very best! and just remember that you are in good hands Angela! xx
you'll be in my prayers tom! best of luck!!
I had 3 of them done. Please keep us posted!
Thank you all for the prayers and the encouragement. I still have quite a bit of head pain. I was awake for most of the angio. There was some problems with my blood and my pressure.
What I saw on the monitor looked like a black round shape with many thick lines coming out of it. It feels like it went all the way to my left temple. Anyway the doctor said I had 30 ? and 29 were taken care of. The one that they did not take care of they said was bleeding but they hoped would stop and die off.
Has anyone had similar experience? Is it normally so long? What is the time between angiograms?
I still have not heard when they want to see me. I was in there for almost 7 hours. Today I heard some noises in my ear but I hopeful that I dont hear them again!
I have just been icing my head the pain meds were making me sick. Any tips?
I guess we did not know that I would have to go back to have another angiogram this was not discussed prior to angiogram.
Thank you
Angela
Hi Louisa
How long did your angio/emblo take? Mine was 7 hours- is that normal? How long between your angios?
Angela
Hi Angela,
Glad to see you back again! :)
Had been wondering how you were doing - thanks for the update & hope the headaches will ease up soon. Take care.
Hi Patti
The headaches are getting better and starting to feel back to my "normal"
Were your angio / emblo many hours long?
Angela
Hi Angela,
Glad the headaches are getting better & you're feeling more "normal"! :)
My angio was in 88 & I recall being in the hospital longer than the procedure itself, allowing the angio catheter site to clot. I also had some nausea & felt a little dizzy afterwards, so had to wait that out before discharge.
I will be praying that your angiogram goes well and that you do have some good news to share.
Dawn
Thank you Dawn
I think they got most of it. One doctor said I would have to go back in 2 months and another said 6 months We did not understand this was going to be a multi step process. The one part they left said it was bleeding just a bit and they hoped it would die off. Did you have to have multi angiograms/emblos?
Angela
Only had one angiogram and am going in for my first emobilization. The surgeon said there may be more. They want to get the AVM as small as possible.
Dawn