Got my CTA results today

Aaaaand no AVMs on my lungs or my heart!! You guys have no idea the gush of relief I felt after having had to deal with my brain AVM and being scared of the possibility of one elsewhere. This sudden tachycardia and shortness of breath scared me!! But hey at least no AVMs there!! Still no clue what brought on the sudden random tachycardia and shortness of breath but the CTA pointed that it is nothing heart and lung related and past recent angiogram pointed that it is not my embolized AVM so back to the drawing board lol!! But yaaay no AVMs there :slight_smile: Just wanted to shared because I was so scaredā€¦so phew!! Dodged a bullet there. They did find myocardial bridging in a distal artery of my heart. But nothing that requires intervention, medication or can cause a stroke or heart attack. So in other words I get a small break from worrying. And can calmly return to physical therapy and have nothing I am not allowed to do :slight_smile:

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Ohh, I know that reliefā€¦ ā€¦like ā€œOHH PHEW!!! Now breatheā€¦ā€
My heart decided to make itā€™s own beat and it was anything but regular. I went to a cardiologist, he gave me a wearable monitor. When I returned the device he plugged it in and said ā€œit shows nothing, so all is goodā€ and I said to him ā€œWell, thatā€™s odd 'cos Iā€™m sitting here having symptoms right nowā€. He jumped from his seat, wired me up and sure enough, there it was beat, beat, miss, beat miss, miss, beat, beatā€¦ it was all over the show like a bad 70ā€™s rock band, with no rhythm. ā€œIā€™ll have to send you for more testsā€ he says and my mind goes straight to all of those ā€˜worst case scenariosā€™. I lined up dates for the tests that day. The clinics wouldnā€™t give me the results, Iā€™d have to see the referring dr.

I returned to the cardiologist, having psyched myself up for a ā€˜worst case scenarioā€™, only to be told ā€œHere, take a tablet and all should be goodā€¦ā€ The relief was overwhelming, I was sitting in my car shaking, asking my wife ā€œwhat just happened?ā€ ā€œdid that just happen?ā€. This all occurred many years ago now and I still take the same meds today to manage it. If I miss a dose, my ticker starts throwing in extra beats and misses beats, reminding me ā€˜TAKE THE DAMN MEDSā€™. The other good thing about the meds is that they have to be taken with food, so I have to eat. My appetite is next to nil and Iā€™ve lost a LOT of weight. But needing these meds, I need to eat.

Dodging that bullet almost felt like an achievement in itself :rofl:

Merl from the Modsupport Team

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It was such a relief!! And I am glad my cardiologist knew what to look for instead of me panicking begging her to check for any possible AVMs but big phew~!! None in the chest region :raised_hands: Now I just have to hope and pray thereā€™s none elsewhere.

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Feels great donā€™t it? I remember when I got a second opinion at Duke after the devastating initial news that I had another AVM by my previous doctors. I clamored for direction as I had gone through a craniotomy, shuntectomy, gamma knife, and a few other surgeries to get rid of the AVM! However, Duke University after a wrist angiogram gave me some of the best news you can get: it was not in fact another AVM but scar tissue! Gotta stay on top of these things donā€™t ya? I wrote and published ā€œMalformation: when bad things happen to the right kind of peopleā€ as a warning to all persons to 1. Get scanned if recommended by doctors. 2. Get it dealt with because watch and wait is like watching a ticking time bomb count down. 3. Be at peace with your decision because elevated stress can cause the AVM to rupture if you opt against treatment. Bonus, if you have children, be sure to get them scanned as well. We donā€™t know enough to know how much of a risk hereditary AVM is but it is a thing and if the doctors recommend it, do it. I hope you have a very restful holiday and a wonderful Christmas.

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Definitely does!! I have gotten a second opinion before as well and glad I did because it gave me a peace of mind that my avm indeed was still dead and bot growing back and all my symptoms as you have said, was just scar tissue playing with me. I have been blessed to this day with wonderful professionals and they are wonderful doctors and I am glad they arr very knowledgeable in avms and always take good care of me because as they put it I have gone through alot already and I was given a bad hand of cards to play with as it is and they are always so amazed on how positive my husband and I are and itā€™s like oh we are just used to it by now lol

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