I hope everyone has a great Thanksgiving holiday: as we near the end of the year, it’s a time for looking back with thanks, and hope for the year ahead.
As Mark, one of the patients in our PSC Community and Operations lead says, “Amidst the rare disease we have shared, we still have so much to be thankful for. I am very grateful for what Ben’s Friend’s has contributed to my own life while fighting PSC years ago now. We need these patient communities to continue for those who are still in the fight for their lives.”
“This is a significant time for Ben’s Friends. Without adequate funding, we may be forced to cut back on the offered services. We pretty much run on a shoestring budget with most of our support going to keeping 40 some rare disease community websites up, domains renewed and so many other things that are involved in providing a patient support community. We want to see this excellent rare disease patient forum continue supporting more patients and their families for many years. If you haven’t donated yet, please visit our donation page today. We are in great need of your support more than ever.”