Hi Everyone, I am wondering whether anyone has been treated at UCSF in San Francisco for an extremity AVM? How was the experience? Would you recommend it? That is my general place for primary care so I thought I should try there first for a check up on my AVM but I would love to hear other's experiences.
I will caution that places that are expert in brain avms can sometimes fail to provide quality care for non-brain avms. I have seen this many times with our members, including my own son. Better to go out of state to get a good outcome, if necessary.