**FRIENDS & FAMILY Well it has been almost 3 months since my Gamma knife surgery i was feeling great and starting to enjoy life again…But suddenly this headache sooo bad and painful has come back, and is non stop this time(its been 4days). I hope and pray everything is okay and it has not spread or anything. Maybe its just the order it goes in to heel, well im hoping so. I was sure enjoying being headache free and being able to do everyday activities again. I go to see the Neurosurgeon again on Tuesday to get some pictures taken and some questions answered so hopefully all is well and it will be nothing!! I am trying to stay positive and not worry, but i also have the other side of me worrying and scared not knowing what it could be already. I am ready to start my family and I do nor my husband want something else postponing it. It has been tough these last 3 years but if we can get through that im pretty sure we can get through this little hurdle. Keeping my head up and staying strong…praying everyday!!!
**AVM SURVIVORS has this happend to anyone else also besides me??
Hey! I had very bad headaches after my avm was removed in 08… Then i suddenly started to have seizures too so i warn you keep an eye on for that… They never told me anything about seizures till after i had already wrecked my car due to a seizure… I pray these headaches go away and you get stronger and better… Honestly if you chug a mt dew, it will help a lil with the headache… Or you can get your doc to prescribe Fiorcet… They are for migraines and help me alot… I hope you get better! stay strong !
Hey Britt, i just posted an update, and i have had migraines the past couple weeks and it was about 3 months after my GK when it started. Let me know what your doc says, because mine didn’t give me much to go on…read my update and let me know if you have any other symptoms that i have had too.
Take care of yourself and take it easy!!!
Em
@MICHELLE thnks alot for info…
@ emily…i just wanna cry now im home alone scared…cannot believe this…i thought all was supposed to get better…WHY ??? Well i read your story and yes i have those symptoms…all of it 
i cannot believe this…so scared…please lets just keep praying and keep ours heads up…well try!!! I go to the doc tuesday so i will let everyone know what it could be…thanks for ur help
Hi Britt. I know it is hard to be positive when you feel bad and hurt. My Mother’s favorite saying is…This too shall pass. I am still praying for you!
Thank you so much Barbara for the support i know i have had the support and answers from you many of times… I love that saying it is great. It is something that i know will help me through these times as long as i keep saying it to myself…thank you again 
Britt,
I feel for you, I was mostly headache free afterwards too until about 4 months after my craniotomy, the day before Xmas eve (Xmas eve eve) I got the worst headache. Almost as bad as the one that sent me to the hospital to find the AVM! It ruined my Xmas plans and ever since then, I have been having weird migraines with auras and C-shaped zig zags and weird smells. I’ve posted about a few of the symptoms. The docs don’t know what it is either. I had one neurologist say that I should be thankful that’s all the problems I had and sent me on my merry way. I AM thankful dear doctor, but I just wanted to know what it is and if you or I could possibly do anything about it!!! So I found a new neurologist who actually wanted to do some tests and try to figure out what it is! Maybe focal seizures or migraines.
I hope you will find out more about what it is, having tests done is a good start, hopefully you and the nerosurgeon will figure it out. Maybe it is something called “release phenomenon” which is just the brain’s way of dealing with all that stress that has happened to it and it will go away soon! That’s what I’m hoping for too. Keep your chin up!
Hi, Britt, I had my craniotomy a month ago after the AVM caused a bleed in the area behind my right eye. This was immensely painful btw. Now today I am feeling pain in the same are and like you am frightened Atb