I am twelve years post bleed. It has been nearly twelve since my craniotomy. I am still having horrible headaches. I am so frustrated with them and the fact that nothing seems to help. Isn't it a little ridiculous that I still have this amount of pain? All I want to do is lay in bed or cry. When I get up to accomplish anything, I feel nauseated and dizzy. I had my doctor thoroughly examine me a couple years ago and could find no deficits. Anyone else had this issue?
glad to find a person who is exactly in the same boat as mine - 12 yrs journey - Craniatomy - Incurable headaches :) mine too has exactly been the same from April 2001 till date.
i too have the same complaint about the medical fraternity certifying am absolutely fine...but the sufferer only knows the real story...
all that i can say is try to keep ur thoughts n actions into those areas which give u great amount of personal joy... then to some extent ur mind will get distracted from this pain.
Good luck.
Santhosh
Bangalore, India.
I'm sorry you're going through the same thing. It's all the more irritating because nobody understands the pain. The response is always: "Take some tylenol." They don't get that it does nothing to help. All that does is make me want to throw up. I do try to stay as calm as I can and focused on my girls since they bring me the most joy. Here's hoping you and I both get some relief sometime in the near future.
Missa.
thank u...take care.. :)
hope they eventually fade! I had the gamma knife in '95 and continued to have severe migraines until about 2006 where I would either be hospitalized or in bed for weeks. Luckily I finally “out grew” these painful episodes after 10+ years; overtime they became less frequent and now its been years since a terrible one. Stay positive!
Missa and Santhosh, you may wish to research Central Pain Syndrome:
http://www.ninds.nih.gov/disorders/central_pain/central_pain.htm
Moderator Patti G knows all about this, and has created several videos about living with CPS. You may wish to talk to her about coping strategies.
Thank you Dancermom :)
Thank you. I certainly will.