Has anyone been successful with a hearing aid that will decrease the loud ringing in your ears (Tinnitus) since your brain rupture?
If so, what kind of hearing aid worked for you?
Thank You!
Would love to hear from someone that has!
Hi, Louisa, I was plagued by tinnitus for roughly ten years manifested as a never-ending, high-pitched ringing sound. I finally went to an audiology clinic in 2009 when I worked for the University of Memphis. Though tested by grad students, The whole process was directed by a faculty audiologist. who told me that I needed hearing aids badly and they would help mitigate the tinnitus because they would be processing sound I was unaware of. She was right: Being able to hear more of the world around me helped reduce the intrusion of the tinnitus. In fact The one positive result of my massive hemorrhagic stroke due to AVM ruptue was that the tinnitus finally subsided. My Neuro surgeon was happy for me, but said it was unlikely that the AVM was causing the tinnitus. Oh, well. I am - nevertheless - happy to be able to enjoy silence again. My hearing aids are Phonac Exelia Arts behind the ear.Because I went through the University to order them, I was able to get them for cost. I recommend if you go this route, to find an area college or university that has a teaching program as you may be able to get the instruments at a reduced rate. Hope this helps you. I was amazed at how much I was missing. My first recollection of being able to hear again was the sound of change jingling in my pocket when I walked.- wow!!
I would love to hear more. My AVM is in my left neck and shoulder but has affected the nerves to the left side of my tongue and more as well. Been dealing with it since 1978 and it has never bled - but have had many treatments and surgeries to help keep it contained.
For at least the last 5 years, I've heard an almost constant pulse in my ears and ringing. My ENT doc doesn't feel there is anything else that can be done. Every time they do a hearing test, I pass it (but barely). What a typical hearing test doesn't recognize is that I can hear the beeps but it's like hearing the beeps in a room with a fan on high - I can but barely.
I would love any information that anyone can provide that can help me go back to the ENT and say, "Have we considered this?" Or, from what I've heard, "this" should be tried?
Thanks in advance,
Tom
Thanks everyone. I have been plagued by phantom sounds for what feels like eons! Your stories are giving me hope that there is indeed a connection to our AVM’s - or bleeding - but mostly, that there is a solution!!
Hi Louisa! In my right ear ( same side as my AVM, I had a very disturbing tinnitus, synchronous to my pulse. It disappeared with embolizationnof my AVM, in which a high flux rate was present. All the best. Christina
Mike54,
Thank you so much for your reply. Last year I went to a local audiologist who gave me very expensive hearing aids that only increased the volume of the tinnitus. Because of this, I returned them and got back "part" of the money charged. I do have hearing loss since the brain rupture, so my hope is that I can find something to hear better and lower the volume of the tinnitus.
So I'm going to research Phonac Exelia Arts.
Thank You!
Dearest Maria.....Hope all is well with you...we haven't been in contact for quite some time.
I honestly believe the tinnitus is because of our AVM's as I had it before my brain rupture, however since the rupture it has been so much louder.
Stay in touch,
Louisa
You I learn something every day from here. I had my AVM back 15-16 years ago and I’ve been hearing ringing in my ears and loosing my hearing but I really thought it was from my family line of loss of hearing. (Hereditary) But now that I’ve read this, im thinking twice about this it? Thank you I’m hing to look into this!
Thank you.....I found a Audiology Center very close to where I live at URI.
I tried 2 different models,but they did not work for me. I also tried a white noise machine at night. I couldn’t get use to it. Now I have nothing and that seems to do best foe me. I am learning to live with it. Good luck. I hope other members can. Help you.
The audiologist tested me for how well I heard high pitch sounds, low pitch sounds plus how well I understood words beginning with letters like S, P as well as combinations. The graph of the results showed where I needed the help and they gave me some options on which instruments would help improve my ability to hear and comprehend. The Exelia Art was one of the higher end instruments available at the time and by going through the school I got a very deep discount. The ENT I saw and the neurosurgeon did not think my AVM, which was located in the right parietal lobe above and behind my right ear, played any role in the tinnitus. I just know that post surgery, the ringing subsided and I’ll take it.
I have had constant ringing in my ears for the past 10 years now. That is how long it has been since my AVM ruptured. Ther range in depth from just barely hearing them to not being able to hear the tv when it is turned all the way up. Some times it sounds as if a jet plane and a locomotive are having a tug of war inside my head… I, nor the doctors know what to do about it, but I wish somebody would come up with something soon. It is very hard to try to sleep when there is a tug of war going on in your head and head covers don’t help.
Hi. I have suffered with tinnitus since having a bleed when I was eight (now nearly 38! Crumbs!)it drives me crackers. I tried a hearing aid recently and it just made it all worse. So no it’s not been successful. But I feel better to now know that others are in the same boat as me. I would absolutely love to get rid of it. I have pretty much resigned myself to living with it. If anyone has a miracle cure give me a call. Cheers al
Another question....My AVM's rupture was on the left side of my brain. I do have ringing on that side, but the ringing on the opposite side is louder. Does anyone have the tinnitus louder on the opposite side louder as well?
My AVM is on the right frontal lobe and I’m quite deaf in my left ear but the tinnitus is louder in my right. I do live in hope that one day something can be done.
Thanks for responding, Alex....I hope the same..that someday they will find a way to help us.
Wow thanks for the info Mike. There is perhaps hope out there!