Lovely to see you here @bhawkins!
AVM can be frightening to say the least but here at the community we like to share our pain and experiences together. Patients here often have similar experiences to yours that involve fear, fatigue and loss. But please do know you are not alone! Do feel free to start your own discussion thread or contribute to others by hitting the ‘general’ tab!
You can hear from @John_P about his amazing experience on getting his drivers licence back when it was taken from him! You can view the discussion here: Re-Applying For my Drivers License 2003
Experiences like us do tell us to not fear and lose hope. Do inform your doctor with your new symptoms however, just to be on the safe side, and do update us with how things go!
Hope to see you around! 
Roshan