How much can I expect to wait for my AVM to be treatable?

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This question is something I sometimes wonder. I have a 8cm long brain AVM in my left side, covering 3 lobes(occipital, parietal and temporal) and both my designed neuro and Barrow had tall me is impossible to treat as “we would have to take away a part of your brain for it to go”… and it’s frustrating.

But I keep reading stories of people who were deemed “untreatable” first time but could get treated years later as technology advanced.

I’d like to heae more of cases like that like… How much did you wait? Why was it untreatable but then no? How was your experience?

I’m giving it 20 years for my case to be treatable, idk if Im to hopeful or hopeless lmao… (I don’t wanna die :'3)

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Hey, it’s you!

I don’t know what to really add :confused:

Just try your best < even typing that for me is difficult to say to someone in your place

To put time into some sort of perspective, the longest fully occluded AVM at Barrow done with a embolization was 5 years prior to mine. I just had an angiogram, it was 4.5 years down to the day since my hemorrhage then embolization - and, I’m still 100%

I haven’t been on here much lately, this stuff is tough for me to hear/read

How r u feeling overall?

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