I there anyone that wean off meds and had seizure two days later and was wide awake through the sezure

I really would like to talk to someone about this very scary but in all im very bless to be alive but never want that again and i really would like to know how long it took for others to wean of meds cause i feel like i was took off to fast but i could be wrong…

Hi niko. There are lots of different type of seizures…none of them are pleasant. I would think a lot of factors would depend on how they wean you off the meds. Type of anti-seizure med…how much you have been taking… Weight…age etc. There is a search box on the very top right hand side of the page and I mean very top right hand side. Type in a phrase or word and see what pops up. Sorry about your seizure. Hope you feel better soon!

Thank you so much god bless : )

For years Ive had complex partial seizures (you lose the time and dont remember but you dont shake or anything - you talk weird and some people move their mouths like theyre chewing and stuff like that).
Now I also have simple partial seizures (same as complex but you remember it - sometimes I feel like I can think everything I want to say but I cant get the words out).
And Ive had at least one grand mal. Before all my seizures I almost always get an aura (a feeling that tells you its coming). Mine is de ja vu. My doctor says thats because my AVMs are in my temporal lobe.

Was it a grand mal seizure with shaking? Or a partial seizure? Ive heard its rare to remember a grand mal.

Hi niko,
While I've never experienced them "awake" before, just the aftermath of a (grand mal) seizure is scary in itself and soooo exhausting. :(
Let your drs. know & hope you're feeling better soon.

Hilary, i was standing in the bathroom brushing my teeth and all of a sudden i froze and my left arm started shaking really hard but i remember everything i was talking to my mom telling her to come and sit me down because i couldnt move. It lasted about 5 minutes