Is there anyone who has the strenth and ability to provide a book of information to send to the parents, siblings, family, friends etc. to explain exactly what it's like to be diagnosed as having an AVM, the treatments, the surgery, the brain damage because of their AVM that could be given to people who need to understand what we are going through.
I have aphasia, so it would be impossible for me to write it corectly.
I feel so badly for all the AVM's who are going through what people don't just understand what we have to go through.
Thanks!