Got the word today… OBLITERATED!!! I am just two months shy of two-year post-Gamma knife and my AVM is gone. All that is left is a 15mmx6mmx8mm scar. I don’t know how I feel about it. I should be happy and I am. I guess I thought I would know that it was gone before the doctors ever told. I guess I thought I woulod feel different somehow, less afraid, less depressed, lighter maybe. I have used my AVM as a crutch for not being able to do so many things and now the crutch is gone and I realize that it was me that was the roadblock, not the AVM. Sure the AVM was dangerous but not as debilitating as the fear of it and of the unknown. I still feel bad but I do feel like I have a whole new chance at life. Instead of living in fear that the time bomb in my head was ticking, I feel like I can and should DO SOMETHING. I don’t know what but I am going to do something. I want to travel. I want to write my next novel. I want to break out of the fear and do something, become someone. AVM, you are gone. You no longer are an excuse for my anxiety and depression. You will not create the schedule for my day. I am in charge! So there!
Wonderful! Now the “monster” can no longer control you, live life to the fullest!
Marie
Congratulations!
Congratulations! Sarah and thank you for strong words that we all can relate too . AVMs become a large part of our lives and I know we will never be the same . But for as bad or as good it is now and for ever will be part of our lives. And in my case it has some ways inriched it. Just seeing the strenght in the people on this site alone is amazing Cya
I am so happy for you, Sarah! CONGRATULATIONS!!!
Wow. Congratulations on hearing those words. I think when it is ‘our’ turn, I probably won’t believe them! I’ll need proof!
Congratulations - I am sure you are sooo relieved.
Congratulations…Im so happy for you…Keep your goals on mind…
HOORAY!!! Congratulations. That is the most beautiful word ever! Do everything not just something! EVERYTHING!
The purpose of life, after all, is to live it, to taste experience to the utmost, to reach out eagerly and without fear for newer and richer experiences.
-Eleanor Roosevelt
Words to LIVE by!
Sarah, Congratulations! Mine will hopefully be gone in 2 years and I am looking forward to getting off the anti-epileptic drugs which I have been on since 1983. What is the Scar from? I thought you had Gamma Knife, did they do a craniotomy on you?
That is awesome news Sarah you must be on cloud 9. I know i would be!!! Did you get the scar from the gamma knife? I wasn’t warned of any scar that has me a bit nervous. They are positive its no longer the avm right. Best of luck and so happy for you!!!
Congratulations!!