Hello! My brother AVM was found on 2/14/08 it is on his left optic nerve. He has had several embli and 1 shot of gamma knife. Recently he was taken off from work due to the terrible headaches. Noone can seem to get the headaches under controll. So today I was informed that he was throwing in the towel. He is sick of the headache and the sitting around. Any suggestions? Please help me help him
Hi Beth,
Put in the search on this site headaches I thought I saw a blog or forum for those.
Love and God Bless
Mark and Tina
Oh Tina, maybe it’s time to turn to a cerebrovascular surgeon. Someone that only does brain veins. There has to be a way to stop the pain. My heart goes to your brother. Have you sent his records(a DVD of his Mri or angiogram) to any doctors? I did not stay in my town…look far and wide if you have to. I personlly love Dr. Brian Hoh at UF/Shands in Gainesville, FL. I don’t know where you live but if you could get there…Check him out
We live in upstate Ny he goes to Buffalo to a dr there they are trying to help. Burt thanks for the info
Sandie Alger(Kasey’s mom) said:
Oh Tina, maybe it’s time to turn to a cerebrovascular surgeon. Someone that only does brain veins. There has to be a way to stop the pain. My heart goes to your brother. Have you sent his records(a DVD of his Mri or angiogram) to any doctors? I did not stay in my town…look far and wide if you have to. I personlly love Dr. Brian Hoh at UF/Shands in Gainesville, FL. I don’t know where you live but if you could get there…Check him out