I had my hour and 45 minute MRI/MRA/MRV Friday, super painful to have to sit still that long. I went to the facility I used to work and the tech I also used to work with, pulled upmy some of my images and compared them to previous scans, there was no blood flow a month post embo to the area of the AVM and now it appears the Avm is growing around the Onyx and old AVM. He also said that my venous return was almost non existent. I know he isn’t the radiologist, or my doctor but working in the field myself, he worked for IR most of his career and just looking at the scans. It’s very discouraging. Validating because I’ve been saying it feels like it’s growing back, but I was hoping I was wrong. Maybe I am. I don’t know.
Last Thursday I went to the specialist as I’ve been having symptoms again since the removal of the AVM right groin and the scan showed another Avm has started growing further down the leg along with various small blood clots, and the specialist said to me AVMs look for other places to regrow they don’t know why but in some cases they have seen them grow back and he referred to it as weeds basically, I hope you can get treatment again and be pain free but us Avm survivors know all to well that burning pulsating sensation never really goes
Mel
2 Likes
I hope that you get confirmation that everything is okay… God bless!
1 Like