I was wondering if anyone else wears or has considered wearing a medical condition ID braclet? I was told by my GP doc and a friend whos a fire captain that I should wear one in case I'm driving or out in public and I have another seizure since my Nerou said we have to just sit back and see if I start having seizures all the time. I carry an I.C.E. (in case of emergency)The paramedics and police here are trained to look for them when an emergency happens, card in my wallet that states everything on my Nerous office card including all meds.My husband thinks thats enough. But because my seizure meds make me bleed more than usual my fire friend says I should have one on incase I get somewhere where the first thing is trying to save me... not looking through my wallet first. Does anyone else wear one? Do you like it? where did you get it if you do? Thanks.
Hi angelaok..I just recently started to wear my Seizure Disorder Medical ID...I..for some reason...don't like wearing braclets, so I have a necklas.. I saw a woman having a seizure in a store and people had no idea what was happening, so I told them she was having a seizure...then the EMT's came in so I left. But for that reason, I decided to get one! It's a good idea.
The bracelet or the necklace is a smart idea. It's the most visible place for your info in an emergency, and the place where people will think to look. Like your friend says, it could save your life. Also, (this isn't very common, but it has happened) police sometimes mistake a seizure for drug-related behavior. They wouldn't even think to check your wallet in that case, so you want your info out where it's visible.
If you can afford it, the best way to go is an annual subscription to Medic Alert. You send them your medical records, and they help you figure out what to print on the bracelet. They also print their phone number on it. Then a paramedic or anyone in an emergency can read your basic info printed on the bracelet, call the Medic Alert phone number printed there, and get all your details from them. Since AVMs are rare, since you see specialists, and since you probably have a long medical record, the paramedics might need a lot more info than you could squeeze on a bracelet. I think we pay about $40 or $50 per year--if you need it even once, you'll be glad you paid it!
Medic Alert also gives you different choices of style, so you don't have to wear the plain silver if you don't like it. http://www.medicalert.org/shop/shopHome.htm
Hi angelaok,
I've been wearing a Medic Alert http://www.medicalert.org/ bracelet since my 1st bleed in 1987 & it gives me a peace of mind knowing that if I can't speak for myself, my bracelet has the basics of my history & someone @ their 800# has more detailed medical history, including spouses name, drs. name, meds I'm taking, meds to avoid, etc. & contact phone #'s.
As Louisa & JH said, "it's a good idea." :)
It was suggested to my daughter while at college she should wear one. She does and found some really unique braclets and necklaces at Laurenshope.com. When you go to this site you can also read the story of Lauren and why her family has started a company that sells medical alert braclets. Never hurts to be safe and protect yourself in case you cant speak for yourself. What if you forget to take your purse with you then your ice card is no good.
I don't, but I don't have seizures. I think that if I did that I would wear one.
Angelaok...another good reason....I had a seizure and was sent to a hospital that didn't have my medical informatin....So they wanted to do a spinal tap and Thank God, my family took me to Mass General, the hospital where I was treated, who had all my information, and just said she's had a seizure..we just need to up her dose....Perhaps if I had my medical ID on...the first hospital would have understood that it just was a seizure and not wanted to do a spinal tap... You don't always have your family with you..so the medical ID answers for them!
I have been considering one myself. I think it a good idea. My most recent episode was in the grocery store and it would have been easier to get help if I had one. Plus at some point I'm hoping to get back to light workouts and jog outside, if I go down I want it to be easy to help me. With something so complex and rare even with a bracelet they may not know much past your seizure but it will save the time of them having to find out if you are wearing the info.