Haven’t had to make a thread for a while. But, I guess I’ll be heading back to Barrow shortly.
I started having an odd light whooshing type sound in my left ear about a month back, which progressively gotten worse on/off - It’s the same side where my AVM is.
Went to my PCP and she gave me an expedited MRI after I told her about my symptom & her knowing of my condition. She seemed more concerned than I was, last week when I went.
I didn’t think much of it at first, since I had no other symptoms. But, it has been persistent this long, so I decided to go in.
Got my MRI results & almost immediately got ahold of my original neurosurgeon at BNI. They’re getting me in for the first available appointment in two weeks.
The MRI showed chronic microbleeds in my posterior temporal lobe.
I still seem fine, but this isn’t exactly what I wanted to hear yesterday.
Not quite sure what he will suggest, but like I mentioned here quite a few times - it’s nice being 20 minutes away from Barrow.
It’s also good to be able to get referred quickly.
Good luck with it. It’ll be interesting to understand what they tell you about what’s going on. A whooshing sound was what propelled me to the doctor 8½ years ago.
I got to live a full life for this long after a brain hemorrhage. That’s definitely something to be thankful for. And, I’m not in any current serious discomfort(surprisingly enough). Just this odd mild flow sound & a few more mild headaches than usual.
But, yeah -
Life sure seems to follow a pattern around me though. I’m doing the best I ever have, physically & financially - now, I get this - whatever this is
Getting his word though, is so priceless compared to some of the folk’s stories I have heard on here.
And, from doing my own research a bit after seeing the MRI results - microbleeds aren’t exactly treatable. They just do what they want, where they want.
Yes. I felt the same about getting to my fifties before worrying at all about my health. That is a complete blessing. But I don’t presume everyone else feels the same.
And yes, I’m not sure what they’d do about “microbleeds” either. From reading on here, some people have CCMs – Cavernous Cavernomas – which I understand to be low pressure blackberry-like anomalies which seep from time to time. I hope you get to find out what’s going on and any advice on how to deal with whatever you have.
Your noises remind me a little of my pulsatile tinnitus but that seems unconnected with things like Cavernomas.