Hi everyone,
I just wanted to come on and share that my son (now 15) had his yearly MRI in May and it showed no signs of his AVM. It seems the Stereotactic Radiosurgery (SRS) treatment he received 19 months prior has worked pretty fast. He will have to have an angiogram next May 2027 to confirm AVM is complelty obliterated.
Below is a break down of his journey as I found similar information helpful when reading others stories,especially in West of Ireland as its pretty rare to hear of AVM’s here.
I know we are very lucky and that not everyones journey here has been so smooth and count our blessings everyday. I just wanted to share, as I always came here for advise and support when I needed it.
March 2024 -Bleed aged 13. Spend 5 days in Temple Street hospital .Angiogram in Beaumont showed 1cm AVM in cerebellam. Recovered well. No damage. Restricted from playing contact sports.
April 2024 -Appointment with Professor Javapour in Beaumont to discuss treatment options.
May 2024 -Treatment plan decided ,as AVM inoperable due location, SRS treatment was best option
June 2024 -Referred to DR Fitzpatrick in St Luke Beaumont . Treatment approved .
July 2024 -More scans and fitted for mask for treatment.
October 2024 -SRS treatment completed. No issues straight after.
December 2024- Some side effects from treatment. Nausea, vertigo a bit of vomiting. No headache. Got checked out in local ED. Liaised with St Lukes and steroids provided for 2 weeks. No issues since.
January 2025 -Cleared to play contact sports again and hasn’t stopped since! Cleared to fly/travel also and told to go live a normal life.
May 2025 -MRI scan Shows AVM less prominent
May 2026 -MRI showed no signs of AVM.