please my name is john i am on my wife’s name she has suffered a brain aneurysm on mon they had to do surgery to remove a 3 inch blood clot and relieve the pressure she has a catheter in now recovering then they need to remove the avm I am a mess don’t know what to do for her
They had to stabilize her icp and now her heart rate keeps fluctuating
Is it normal she can’t remember the year or where she is ? She does recognize me and knows her name and my name
Please keep her in your prayers
John, We are here to support you and your wife.
There is also a wonderful support group for those with Brain Aneurisms...great group of people..Check it out.....http://www.bafsupport.org/
There also is a wonderful support group for Caregivers that may be helpful for you.
John, so sorry to hear about your wife. All you can do for Christine right now is be there. It is very common for her not to know where she is or what year it is. She's suffered a major trauma to her brain. The extent of the damage may not be fully known right now. It's very good that she knows her name and your name. I expect there will a lot of things happening for her over the next couple of days. Have the done an angiogram yet? This will tell them exactly where the AVM is, what vessels it's affecting, it's size, etc. From there they can try to determine the best treatment plan for her. You've definitely come to the right place, John. Let us know what questions we can help answer and keep us updated on Christine.
We had angiogram done before we were waiting for surgery date and it ruptured they did another Angio before removing clot now we have to wait for swelling to go done and then surgery for avm removable
Sorry to hear about your wife, she will be in our thoughts and prayers.
Hi John,
Hang in there…my husband was a mess when I was in icu with my bleeding avm. Just keep talking to her…be positive, it helps a lot! The mind is amazing and our bodies heal in miraculous ways. She will be ok! It’s been 7 years for me, a lot of ups and downs, but time does heal. Please reach out to me if you need to talk.
I’ll be praying for you!
Hello John
I did not have a rupture but had five blood clots then a stroke I actually knew what year it was but I could not say the word 11 so I just said 1 and I was too tired to get out the last 1
I agree with Stephanie to talk to her and make eye contact. She may forget what you tell her but each tell her and tell her she will get better. I was not able to talk or walk and was able to regain everything just have some weakness and pain on my left side
She is probably scared and trying to figure out what happened and how it happened and feeling scared she is going to be in this state forever.
My family figured out those ice fruit bars I liked and somehow it helped with my brain pain
after I was out of the hospital I wanted baskin robbins
Even if she is not making sense with words give her a pencil and paper and see if she can write it out ( its different parts of your brain)
I will pray for you both- I know my husband and I have talked about this time in our lives and we were both scared and thinking how are we going to manage and its one day at a time
I am really so sorry this happened to her and I hope they her swelling goes down quickly
also my family would request those gel ice packs and put on my head and it helped as well
Angela
I am so sorry I did not see this earlier John. It's been six days since you initially wrote this and I am so sorry you are going through this with your wife. Reading through the many helpful responses, I have to agree that just being there, eye contact and talking to her (even when she can't respond) is a huge thing from her side. I don't know how many postings I've read from members here who appreciated that from others and made sure to say so. Also, if you haven't already, seriously consider the caregiver support group to reach out to and get sometimes helpful information from others going through the same thing. Try not to underestimate the power of love. Well, I say that from personal experience. I hesitate to say (or even assume) yours is similar, but I strongly feel love is a constant. Good luck with this thing (to both you and your wife) and know this is a very good place to be with some awesome individuals who only want to help. Welcome :)