I had my craniotomy about 4 1/2 weeks ago. I was kind of hoping to be able to transition back to work in a week or so. Saw my neurosurgeon today and he said he will reevaluate me in 5 weeks. I have mixed feelings -part of me was relieved. It would have been a struggle to go back even part time. I get restless and want to be back to normal but I realize I have a new normal. I am just kind of sad because I was hoping to transfer to another job that I would like. I need to count my blessings. We also have to figure out whether we can radiate this AVM remnant or just watch it. Dr. said he doesn't know how long I will have this limp. I am mainly venting because I know this group will understand. I am both relieved to not go back to work yet and sad for what has happened.
Hi Pat. You might find this thread interesting…
http://www.avmsurvivors.org/profiles/blog/show?id=1543517%3ABlogPost%3A435281&commentId=1543517%3AComment%3A442609
That is awesome. Thank you so much Barbara!! I needed to read that.
Hey Pat,
Like you said u only had surgery 5 weeks ago I pray that u fully heal and that ur limp goes away. i also had an appt on Monday and sadly my neurosurgeon told me that my periphreal vision that was lost may never come back..i was hoping that it would bc i love driving and i can really notice the loss. I sat there upset and confused but finally came to the conclusion that one i knew that there was a risk that this would happen second it could always be worse and should be grateful ut ththat im alive...he says my brain will adapt and that soon i wont even notice it.....I also have muscle weakness on both legs but that was from the steroids ive been and postion i was in for surgery.
Is the limp caused from surgery? or did u experience it before?
Thanks Nay! The limp was caused by the bleed in December. It has gotten better but I am sad that I cannot walk very well. The limp is noticeable. But I am glad I can walk at all. It is just sad to have the neurosurgeon say I may not lose the limp. It is hard to be patient and have people understand what it feels like and why I look OK (mostly) but cannot go back to work yet.