Does anyone else on the Network have Photosensitive seizures since their cran?
Hi Lou. I spent the first few months following my surgery living in dark rooms and wearing very dark glasses any time I would go outside. I wouldn’t have grand mal seizures or anything, but the light did cause a lot of discomfort. It hurt my eyes, gave me headaches, and would often leave me feeling dizzy. It has improved over time, but it has been over 7 years since my surgery and I am still quite sensitive to light… Some types of light are even more difficult than others. For example, fluorescent lights give me headaches, I can barely stand the sun without wearing sunglasses, and oddly enough, some stores, especially some of the local warehouse stores have mercury vapor lights that make me feel about at close to seizure as anything else ever has. The fact that I am on Keppra makes me wonder what would happen if I went into that light without being on my medication.
Hi Jake...I actually have a seizure from the light. My brain goes died and I can't think or talk at all for about 10 minutes. I don't pass out, but it's a very scary thing to go through. It took me about 10 minutes to be able to think to call my daughter. I'm on Keppra too, but it has happened when I look into the sun, florescent lights, etc. I called the Epilepsy Foundation and told them what happens and they say it's Photosensitive seizures. I've only had 3 of them since my surgery in 2007, but I believe if the meds haven't kicked in yet and if I don't have my sunglasses on, it will happen. I wear dark blue lens sunglasses which I was informed about from the Epilepsy Foundation. I do all I can to prevent them, but when it happens, boy does it suck!
Dark blue, huh? I may have to look into that. I have some yellow tinted glasses that I wear while at work because the place is nothing but flourescent lights. My sunglasses are just dark gray lenses, but if the blue will help, then that might be the best way to go. Did the foundation give an explanation as to why blue lenses work better?
No, they didn't, but if you look it up online at the Epilepsy Foundation, they will tell you that you need dark blue when you have photosensitivity. Check it out!