I was wondering if any of you have had any post operative symptoms resembling seizures. I have had head shaking that mimics a convulsive seizure without thefull jerking of body. Out of nowhere I wil just start having head shakes thbahat feel like my brain is vibrating in my head and after a few mins the headshaking becomes visible to me. Docs tried to claim it was psychogenic so I had to see shrink whom I have seen 3 times. She determined after last visit she doesn’t need se me that I have no underlying stress and that she thinks my seizure-like symptoms are medically related not psychiatric. After 4 day epilepsy monitoring at hospital docs said nothing indicated epilepsy(as a child I was diagnosed with epilepsy) that nothing indicates that now but I got medical records where they reported I had a sharp wave near surgery area indicating partial epilepsy developing along with a small mesial right temporal cyst in same area. Butcrazy thing is no doc told methis. My surgeon doesn’t know but I got app with him in 2 weeks so I can ask him some questions. But I just wannna kno have any of you had similar issues or know what direction I should go to get definitive answers? Today I had my regular neurologist read my recrds and he explained the cyst and partial epilepsy diagnosis. Any info would be great.
Hi Patrice. This sub-group might have some info for you…
http://www.avmsurvivors.org/group/avm-with-seizures-epilepsy
Thank you for keeping us updated. I hope you feel better soon!
How frustrating for you! Did your neurologist suggest any type of medication since you are having seizures? If you don't get the answers that you feel you need, I'd seek another opinion. Good luck!