The idea of starting from the beginning right now and telling he story f how I wound up with a page on this website seems entirely to daunting of an undertaking right now (especially because I am secretly typing this in class right now.) I just wanted to briefly say hello to everyone and say what a nice site this is. I also wanted to let members know that I had Gamma Knife last week. I am lucky in the sense that I have not had a bleed, and there were no immediate complications from the Gamma Knife or the angiogram. I have been back in school since Tuesday, and feel surprisingly fine. I would be happy to discuss my experience with anyone who is considering Gamma. I know I was scared out of my mind before the procedure, and the information available about the procedure can seem very thin. So if you want to know if my hair fell out or if my forehead is scarred, ask away!
Marilyn,
Thanks for sharing your story. I had Gamma Knife one year ago and remember being fatigued and sleepy a lot for the first few months, but so far so good with no complications. Please keep us updated with your MRI followups.
Ben
Hello
How are people coping waiting to see if the gamma knife has obliterated the AVM?? 2 years feels like such a long time - my gamma knife was only 2months ago…
It’s been 12 months for me so far. During that I had so much anxiety and depression I spent some sessions with a therapist. Didn’t help much. Finally reaching out to family and friends did the trick for me. I look forward to each 3 month MRI as reaching another milestone to recovery. You?
Some days I cope better than others, sometimes I convince myself that I’m about to have another bleed, but if I get through the night, I normally feel a bit better.
I’m now supposed to have another MRI to check the situation after the bleed, hopefully that won’t be too long and then I’ll have better idea what’s going on (whether that’s a good thing or not I don’t know!)