Does anyone have information about proton beam therapy for avm's in children?
Kim, I am an adult, but I had Proton Beam Radiation at age 57. It took 2 years but the radiation worked and I became AVM Free. Where are you have the radiation? I had mine at Mass General. If you would like to discuss what it was like more, let me know!
Hi. It's not scheduled. I've just been researching it and wondering if another child had had it for dural avf. Thx!