Questions about Raynaud's and Exercising

Hi! I am new to this site for bare with me!

Background: So I experienced an AVM in 2007, had brain surgery in 2008. I have had 3 seizures post surgery but other than that life has been great. I do have a couple of questions.
1. Has anyone else had experiences with Raynaud's syndrome? I recently was diagnosed with it. My primary care physician doesn't believe its a problem but I'm wondering if others are on medication for it? Has anyone taken any other strides to relieve their symptoms? I particularly think its weird that my doctor thinks nothing should be done about this.

2. Whenever I go to exercise I experience weird symptoms. Sometimes I get dizzy after about 15 minutes on the treadmill in addition to increased anxiety OUT OF NOWHERE. It eventually goes away. Does this happen to anyone else??? I'm wondering if my head is sensitive to things such as running fast, jumping etc. 3. Recently my anxiety has been through the roof, I can be doing anything, (watching tv, reading a book, and my heart will start racing for no reason. Sometimes, when I'm walking I will get really nervous for no apparently reason. I'm currently on Keppra. Anyone else have this side effect?

Hello BD20
I dont have Raynaud's but sometimes get the same symptoms.

I do have something else called Ehlers Danlos type III and sometimes people with Ehlers Danlos have some issues with their heart rate this can be something called POTs
which is Postural Orthostatic Tachycardia Syndrome
http://www.dysautonomiainternational.org/page.php?ID=30

You might want to see a heart dr who knows something about Ehlers Danlos not saying you have it but they tend to be more open minded

Here are some safe exercises -
http://www.dysautonomiainternational.org/page.php?ID=43

Now when I get on treadmill I have to really slow it down before I get off cause I feel dizzy not sure if its related to my avm or not.

I was on Topamax for a few months but off now cause I just slept all day on it

Hugs
Angela

I want to feature this discussion to try to get a few more experiences…

Interesting!!!!! I will check these things out! Thanks!

Thanks Jeremy!

also I am on another support site for ehlers danlos and quite a few have had avm's DAVFs like myself maybe there is a connection

Angela

Hi BD20, We all here can only advise based on our own experiences, And as you can guess they will be different for each person based on medical information, What has your doctor advised in this situation ? I also take Keppra but have found no issues with it.