Has anyone dealt with radiation necrosis after having gamma knife surgery for their avm in the brain? My daughter had gamma knife about 4 yrs ago, She got the wonderful news the other day that the avm had died, however she suffers from migraines and such and they told her it was from radiation necrosis--that the bits and pieces of the avm are like floating around her brain causing swelling which in turn gives her these awful headaches and other unpleasant side effects.
The doctor then mentioned wanting to try some new iv treatment for the necrosis, It has not been approved for brain avms but has been approved for another type of avm. Currently the doctor is having discussions with the people who invented this treatment and is in hope of giving this to my daughter.
I'd like to know more about this iv treatment if anyone here knows about it.
THX
Cin
Ben Munoz who started this site had a problem with it for awhile…http://www.avmsurvivors.org/profile/benmunoz
I did a search for you…http://www.avmsurvivors.org/main/search/search?q=Necrosis
Thanks for the info. For some odd reason I could not seem to find a search space to type in what I was looking for. I am probably just being ditsy today--lack of sleep from all the Thanksgiving prep, cooking and the usual pitfalls such as my oven thermostat decided to take a hike in the middle of cooking! LOL! Never fails something ALWAYS happens during the holiday meals;)
Kindest Regards,
OkieCin