hello first thing first i want to thank everyone on this website for giving me the courage to tackle my problems head on i’ve recently undergone resection surgery to remove my avm in my right occipital lobe it’s been a scary time i found out in august and had my surgery in december i’m 22 and was scared how my life would turn out even though i woke up with some visual impairments i’m happy i tackled this issue and got my cure my avm was 100% destroyed but i have a follow up in 6 months to confirm i had the option for all treatments and choose the resection for it being a cure i couldn’t wait years for it to take effects though it’s hard getting around right now due to my brain still healing i’m happy i no longer have to deal with anything regarding a avm i was lucky i never suffered a stroke or seizure everyday i get a little better and i’m thankful for that you guys have never seen me but i’ve seen countless stories on you guys and just wanted to thank you guys i had my treatments at jackson memorial hospital in miami florida with doctor robert starke he’s An incredible surgeon and i highly recommended him if you’re in the area or willing to travel my avm was a grade 3 3.5x3.5 in my right occipital and i’m willing to answer questions to help i really wasn’t going to ever make a post here but i didn’t want to find a cure and not share my experiences with you all i’m still here with my huge stitches and willing to answer any questions lord knows i would’ve wanted someone to help me while i was going through this so here i am -jorge
Great to hear all went so well. A big thanks for being here, together we are much stronger! Take Care, John.
It’s great to hear from you and fantastic to know that you’ve had a good outcome! The one thing this place is set up to do is for us all to stand together in this. It’s very scary stuff and I think it is an amazing thing that we can help each other through the worry by just the power of the written word!
Congratulations on getting through well! May 2025 be a remarkable year!
Richard
Congrats Jorge. That’s great to hear and thank you for sharing. I think we should have a bell to ring when someone becomes AVM free.
Hi Jorge, so glad that your surgery was successful!! Thank you for sharing your experience on here. How are you doing with your recovery from surgery now? I am curious to know what kind of things you have found to keep yourself occupied with during recovery. My 11 year old son will be having a resection in a couple of months and we are looking for information on what to expect after surgery. He also loves video games so we are hoping that may be something he can still enjoy in the post op period.
Best wishes and hope your recovery is going smoothly!
Brandi
hello honestly recovery hasn’t been as bad as i thought it was i still have visual impairments but i try not to let those things get to me, i try to play video games or watch tv to pass the time till i go to work , recovery has t been easy but certainly not as bad as i thought. thank you for the kind words and i hope the best for your son.
It is so great to hear that your recovery is going well!! Thank you for sharing this and I wish the best for you as well!!