Is it normal to have seizure at night despite of having Keppra as maintenance meds?. The seizure occurrence really affects my sleep. Is there anybody who also experienced the same?..What is the best thing to do about this?
Cyrus, you should see a neuro (or whoever gave you Keppra). When your medication is working correctly, no seizures should occur. Please keep us in the loop.
Sending prayers your way and I agree with Tim that you need to see your neuro ASAP…God bless!
I have had seizures in my sleep before, but I learned that a medicine or medicine combination should eliminate ALL seizures. I would speak with your MD and have some dates/times if possible that you can explain to him how you know it was a seizure. i figured this out after having bitten the insides of my cheek and i might notice this with my tongue, but usually i noticed it after salt got into the area i had bitten and ouch! it was only after this happened a few times I realized I was biting the inside of my cheek in my sleep. Possibly by having seizures in my sleep. Addressed this with my MD, and i cannot remember if medicines were adjusted or not, but i know i stopped doing this. Your situation depends on your definition of normal, but with seizures, the only question you should ask is, "should this be happening?" your MD should address this with close monitoring to see how often it occurs, and then maybe with a medicine adjustment. You should not have to live having seizures at night during sleep...
Contact your neurologist. Often times with seizure meds it's a lot of trial and error before you find the right combination of meds and dosages. Perhaps Keppra is not the correct med for you or perhaps the dosage is not correct. Good luck
Thank you Trish. You are correct. Many different combinations and dosages can be tried in handling differing seizures in each of us. Contacting a neurologist who works in the seizure area, especially epilepsy, may be the most beneficial to those of us living with seizures. However, some individuals, a member of myepilepsyteam in particular, and young girl in CO (example for cannabis), actually do better without conventional medications.
Hi Carlton8, I wish to inform you of our medical professionals handling seizures, many are neurologists, not being able to eliminate ALL seizures. Many of the various forms of seizures can be controlled through varying medications and dosages, but they are not eliminated. Some individuals, often young, are actually able to control the seizures, by themselves, over time. It does not mean the seizures will never return. Some epileptics are experiencing seizures, but medications create more problems than actual control. As an epileptic and member of myepilepsyteam, it has been more beneficial to learn through communication with other members with knowledge and experience, than my current neurologist.
Hi Cyrus John, Seeing a neurologist is a good suggestion presented in a few replies. My tonic-clonic seizures, during my sleep, had been controlled with Dilantin, but generic form of phenytoin did not do as well. Partial and complex partial seizures were better controlled through use of Neurontin or gabapentin, which also helps depression. Each of us is different and the proper medication and dosage may take some search. Side effects and interaction of medications are also to be considered in what will be used. It is a solid reason for reaching for a professional, who works clients experiencing seizures.
Hiya,
Sorry to hear that you are having these problems. All I cab say is that when I went for my pre-Gamma Knife operation I had recently had a seizure when on 100 mg of Lamotrigine. It was less severe than the ones I had had before. My seizures are scary, agony and stop me from walking for a day or two afterwards. Because I was so scared about haviong more I kept asking him about medication. He said: look, we can control the seizures with meds. I asked it they would be gone or just less severe to which he replied - we can stop them, although it may take some change of dosage and or a combination of drugs. I am still on Lamotrigine (300 mg per day) and I have been seizure-free now for 6 months. Believe me I thank whoever made me for this every single day! I hope it continues for me like this of course but my message to you is: Yes, it can be controlled and stopped entirely, like my neurologist said. Ask him about a change or a combination of meds. I am unusual in responding to one drug alone they tell me.
Best of luck to you and I really hope it works out.
Chris
Yeah night time seizures whilst on meds are common. Im on tegretol and topomax and still have night time seizures complex partials. Ive got a disc problem and sciatica at the moment all related to them. They are a real pain.you could try a change of meds. Its worth it for a while. Especially to avoid my problems.Ive tried a few so ive given up. Good luck im sure you will find the right combination.
Do you have high ammonia levels with topamax.
I’ve never had high amonia levels with topomax. It’s word finding which drives me nuts. I’m having problems with my white count being too low but that could be the tegretol and the number of years I’ve been on it. It’s 38 years now. Since I finished work my seizures have reduced slightly which is good.
I’m on a lot of other medications for fibromyalgia, anxiety and a also have a pseudotumor cerebei th a I was also born with. I have a shunt in my head to drain spinal fluid. The first shunt in head got infected and when they took it out, voila, they found the avm. It’s been a long road and these "seizures " just won’t let up. My neurologist, second one, seems to think they can be managed with counseling. Been there done that. She keeps repeating herself and I really don’t think she’s hearing me. I have so much scar tissue in my brain, it could be a road map with speed bumps of glue that burst. I am so sick of trying to explain what’s going on with me to doctors. I think she needs to read trish’s story in this site because how she feels is me to a T. Not kidding all of it.