My avm are small and was wondering if it matters how big they get when they burst..and will the nerologist even care to help them go away if they are small?
Hi Shania52. It is jus my personal opinion but if the neurologist does not care…it is time for a new doctor! I am sending waves of positive energy your way! Plus prayers too!
Agree with Barb, if it's big enough to be called an AVM, it's big enough to get it treated if possible.
Best Wishes,
Ron, KS
Dont let anyone ever undermine your avm...my brother's is very small, and when it ruptured, it caused him all kinds of craziness. It is also inoperable; they could only do GKS. I agree, you should get a 2nd opinion.
Best of luck
thank you for the opinions...and ill let you know..i go on the 15th so we will see..if i will need to get two opinons from two different neroligist..and thanks for prayers and support. God bless you all!
AVMs don't all eventually burst. Yes your neurologist does care even if it is a small AVM. Just be glad you have a small problem. Some people live long lives w/ AVMs intact...just work w/ your doctor and get a 2nd opinion if you feel you need it.
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both of the ones i have had burst and now are filling up and growing again...i want the one on my pons removed because thats the one the might cause me the most harm...and no avm is a small problem doesnt matter how large or small it is...and if they burst once the percentage grows with tnem bursting again...and no some are lucky and go thru life and not even know they have them and they dont burst or cause problems...but they are the lucky ones and thats few and far in between on being lucky. I havent even seen a doctor about them yet not till the 15 th of nov...and every doctor that i have told about my avms to,have said i was crazy to not go to the er when they did burst,,but i had no idea what was going on..so my angel was with me and i was lucky to have lived or not become impaired...but it isnt a SMALL PROBLEM...so thanks for the reply..
Hi, I'm new to all of this and I'm not a neurologist neurosurgeon, or INR doc. My understanding is that small AVM's tend to bleed more often than others. If you don't know the "grade" of your AVM's, ask when you see your neurologist. There is a specific criteria set to grade an AVM. Mine is graded currently a 3 because it is greater than 3 cm. in size and less than 6 cm. which would put it as large. (< 3cm is considered small) Another criteria has to do with location, is it on a critic area? For me the answer is yes because mine is on my left motor and secondary motor cortex, affects my arm and leg on right side. If you have had a bleed, that's another point, No bleed for me but a seizure instead. As for doctors not caring- that isn't a form of treatment. One option for treatment is to wait and observe for any changes, usually if it isn't over a critical area. Your comments above are correct and knowing that yours have bled must be difficult. I wouldn't be calm waiting either.If you do feel symptoms, go to the closest ER (hopefully they have a neurosurgery dept.) and they will scan then and can call in the right people to deal with the situation. Trust that you are where you are meant to be and doing what you should be doing. After all, you have angels watching over you.:) I have noticed that some comments from others can be a bit gruff, in the south we say they were weaned on dill pickles, lol. It will all work out as it should and I will keep you in my prayers. It is the confidence you have in your doctor that will make things emotionally easier for you. I am going with a second opinion doc halfway across the states. It IS brain surgery and I want the best hands working on my brain. Keep me posted and I'll be sending you positive vibes!
It is my understanding that some researchers are suggesting that small avms are found by bleeds more often than large ones, but that may be due to larger avms being more likely to cause other side effects leading to a diagnoses. In my personal opinion, every avm should be taken seriously! I am not a doctor, but would recommend another opinion if a doctor is suggesting to leave it alone(preferably a well known avm neurosurgeon).
Prays and thoughts your way!
thank you so much for your reply...and you are so right...and i will know what is to become of them on the 15th of nov...my first appt with a neroligist about them...and thanks for the vibes:)
thank you:)
yes i will not stop till i get the very best advise!
im just so tired of hearing locust sounds all the time...its rings at times too..mt avms have bleed and grown to 9mm and one 11mm but whos to say how big they were before when they burst'ed..lol sorry ...and i have a wonderful support group and appreciate it tremendously from everyone of you..and to jesus my saviour who keeps me safe!