In 2023 I was diagnosed with a cerebral AVM on the right side. In April this year I experienced my first rupture while studying for my first-semester exams. I felt as if I were dying—the left side of my body grew cold—and my roommate carried me to the emergency department. I was admitted there, and the next day I was moved to the ICU, where I spent nearly two weeks. From the ICU I was moved to a ward and remained there for another three weeks, still without medication. Every day felt like I was on the verge of death, but God was with me at all times. He comforted me when fear overwhelmed me and gave me a sense of hope and peace to live.
After three weeks in the ward, my doctor said there was no treatment for my case and discharged me, advising that I would need to fundraise to seek medical treatment overseas. With faith, I withdrew from my studies and went home. When doctors let me down, I trusted the Doctor of all doctors—God did not leave me. He is with me every day and is at work, and i believe he will completely heal me in his own timing.
Welcome to our community. I experienced a bleed from a left temporal AVM, and was fortunate to have it stop bleeding and managed the swelling through steroids while I was in the hospital. I ended up with Gamma Knife treatment 6 months later, so I was fortunate to have that available. We have a lot of varied experiences here, many have had craniotomies, embolization, gamma knife or a combination thereof. We also many have who have not opted for medical intervention, or had the opportunity, many who’s risk is too high to attempt a medical procedure.
We are a diverse group, and will support one another in their chosen path, but will all pass along our experiences. We are all in this together! Take Care, John.
It’s a long battle and I also had a right frontal AVM that bled 1 month after being diagnosed, however being positive and trusting in God helped me get through it… God bless!
disculpa, buenas tardes, pero te curaste, yo llevo diagnosticada 15 años con una pero no hay tratamiento ni cura, esta demasiado grande y es riesgosa, por eso quisiera saber tu caso
Excuse me, good afternoon, but did you get cured? I’ve been diagnosed with one for 15 years, but there’s no treatment or cure. It’s too big and risky, so I’d like to know about your case.
I’m not completely cured but everyday when i wake up fresh, i used to thank God for his grace to keep me going under his peace. It’s been 6 years from now without treatment but I’m still surviving and progressing on with my studies as any normal person would do. My faith is i would rather go my whole life believing for a miracle than give up one day too soon.