We will be traveling to London soon with my thirteen year old daughter who has a disappearing AVM (thanks to Proton beam and embolization). This is our first trip to London since her bleed and the discovery of her AVM. I would like the name of a recommended Dr or Drs who specialize in AVMs or are recommended just to have on hand.
Hi, For my spinal AVM's I saw Dr Nick Plowman, consultant oncologist at The Cyberknife Centre, Harley Street, London, where I had cyberknife stereotatic radiotherapy for 2 AVM's.
For the remaining AVM embolised, I was at the Royal London Hospital where I saw a team of consultant neuroadiologists, Dr Ken Wong, Dr Levan Makalanda, Dr John Wadley (cons. neurosergeon).
All had done work with brain AVM's although mine were/are all spinal...hope this helps...