This is my first post here since all of your wonderful posts have given us the information and support I and my daughter have needed through this journey. She had her second gamma knife treatment a couple of weeks ago and her hair is starting to fall out. She did experience some hair loss after the first gamma knife, and being a teenager who prided herself on her hair, it was devastating. Considering all that could be with an AVM, it seems like it should be trivial, but it just one more huge loss in a long list of losses. It seems that the hair is coming out a bit more/faster than last time and she is concerned that it will be a bigger and more noticeable patch than before. We know that it will (very likely) regrow over (a long) time, but has anyone used or heard of any supplements, treatments, etc. that may speed hair regrowth? Or ideas for covering the hair loss so it is not so apparent? She just needs some hope. Thank you for any ideas you can offer!
Hey @AlisonO it’s great to hear from you!
One of my favourite humans is @corrine who had a big embolization procedure several years ago and she had a bunch of hair loss, which was associated with being on the x-ray table for a long time.
She documented her hair “journey” here: Post embolisation hair loss - my hair recovery (pics and dates)
and she gained the offer of a very smart wig from the Little Princess Trust.
Since this is a UK trust, I assume it would not cater for people in California but maybe find out if there is any similar organisation in California or the US. Hair is a big deal for anyone, never mind being a teenager, and when it comes out in chunks it’s a proper downer.
I also enjoyed reading about @Brandi3’s son Luke’s badass tee-shirt today. There are definitely ways we can support our kids through this trauma that includes looking after coolness.
Very best wishes,
Richard
Thank you!