Unforgetable

When all go right, when you are living the most importants and beautiful days of your year, and something comes and destroyes everything. When you’re young and happy to live, so you do like the others, you miss all your problems and deseases, you live. You love the life. Your 1st year at college (lycée in france) is finsh, or almost, when you decided to bury your worries, your shits of this year that you have rather bad lived. You do nights. With my friendgroup we danced and drinked ( a little, seriously) 4 nights in a row. Everything go right. But 2 mornings after all that very good moments, i felt wrong. I was feverish, my leg of my PWS make me sad, so, we listened the doctors, about i should take an aspegic 1000 if i was ferverish. Poor stupids. This one had fluidized my blood. My leg had triple in size, i began to vomite and it was impossible to moove, stand up or anything. My mother called an ambulance, they leaded me from my room to the car. Here, i don’t understand what’s happened. I nerver felt this feeling of have a deasese. Here many questions trought my head. What do i do ??

Arrived at the hospital La Timone, in the emergency, i was sleeping for escape of all that (thanx to morphine and codéine). They make me a first catheter. I hoped return at home in the evening. LOL. 10 days later i was already here.

They give me antibiotics, but i vomited all and eat nothing, so they decided to make me another catheter to have the antibiotic by drip . The days gone, and nothing happened. They decided to make me another catheter to have another antibiotic (the third). It was a calvary. I can’t moove my legs, my arms, and i suffered always more. I could not sleep the night because the nurses comes all the hour to change the 5 antibiotics (yes at the end they gave me 5 antibiotics) and the machine of the drip make noise, everytime the same. So i sleeped the days, to escape of this nightmare… One day they care me to scanner, they hook up the iode in my catheter which made me suffer. At the time to inject the iode, everything falls appart, the iode came in my tangled hair like dreads locks :’) That’s it. I felt i was fed up. Everyday i said “it can be not worse” but yes, after the iode, the catheter, the regular and then, they change my bed to a special which was unconfortable and make noise too because it was in air.

I was lost. Few days before i danced, now, i cry.

My mother and my dad were here, all time, and i thanx them because they are fabulous.

One day, i was doing i big crise, i needed morphine, i was out of strengh. But the stupid nurses cannot instal the morphine, they don’t arrive.

I undergone a lot of tests and nobody understand what’s happened… One day they were my mother, my father, my brother, and the girlfriend of my brother, and my boyfriend. The day where it was all my family, i’ve do a big crise, the most unbearable were not the big crise. It was that i saw them suffer, because of me, and i can not do anything, for me, or for them … The guys of the service of REA comming, and to make me more strong, my boyfriend make me smile and said “look, they are beautiful!”. I really love him.

After culturing the bacteria, there were anything. So they had conclude i was doing an eresypele. But nothing is sure today too.

10 days i return at home, i saw my horse (he’s is my garden) and i bursted into tears. I was in wheel chair. But i was at home, and the worst was behind me.

The simples little progress make me smile. The weeks passed, and my moral went back.

A month later, i can walk, and ride my horse. Today, my leg has not recovered its autonomy. But this episode served as a lesson. But too, make me conscious i had a deases that it should not be taken lightly.

I said, the things that make me suffer the most today, is the things that i’ve understood i have a desease, and i grew up, and i lost my unconsciousness. Today I have difficulties to handle all this, my memories , my ideas and my future , many questions haunt me .






Thank you to read.

Tidou, I would like to recommend an additional group for you on Facebook: Klippel Trenaunay Weber Syndrome (KTWS) Support Group

The members all have Parkes-Weber or Klippel-Trenaunay. They can probably help explain this episode to you. It sounds like you had cellulitis to me, which PWS and KTS patients are prone to, due to improper circulation as well as ulceration. You can get some tips on how to cope with this,

I don’t want to share that on fb. On fb all people see our activity so i don’t have confidence…

I understand. You are welcome to join and just read rather than contribute.

So glad you shared with us what is the latest going on. So sorry to hear, it must of scared you so very much. Hope you have great support around you and very knowledgeable physician. I am glad we can be here for you anytime. Keep us posted.

I intend to continue writing one , this site is really cool, and share all this really makes me feel good!